Changing Places – Accessible bathrooms

This year the Cumbria Neurological Alliance has made the lack of Changing Places one of its priorities.

Please check out the website http://www.changing-places.org/

Changing Places

Changing places, changing lives – Sometimes you just need to change one thing to open up a world of possibility… 

Over a 1/4 million people need Changing Places toilets to enable them to get out and about and enjoy the day-to-day activities many of us take for granted.

Changing places provision in Cumbria is disgracefully limited.  We want to work with hotels and motorway service stations to improve this situation.  It can be done – see this project:

A number of guests with higher level accessibility needs had been visiting Marwell Wildlife, but they weren’t staying, because the attraction didn’t have the facilities they required. Read more about how adding a ‘Changing Places’ accessible bathroom has made all the difference to Marwell Wildlife (PDF, 6.86MB) disabled visitors and their business.

https://www.marwell.org.uk/zoo/plan/guests-with-disabilities

 

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Community Transport inquiry Deadline 3 Nov 2017

The Transport Committee is launching a new inquiry into the licensing arrangements for community transport minibuses and the broader sustainability of the community transport sector. The deadline for written submissions is Friday 3 November 2017.

Lilian Greenwood MP, Chair of the Transport Committee, said:

“Many people rely on community transport services to access healthcare, education, employment and leisure. These include people with disabilities and people in isolated rural areas, which are poorly served by conventional, commercial services.

Our inquiry, in response to recent interpretations of the licensing rules, will take a balanced look at the community transport sector, including how to ensure a level playing field for competitively tendered contracts, where appropriate. Ultimately our concern is that socially valuable community transport services are protected and remain sustainable in the long term.”

The deadline for written submissions is Friday 3 November 2017.

Find out more

Fuss Free Phones

Disability Rights UK partners with Fuss Free Phones to offer exclusive package for people who have difficulty in using a mobile phone:

Fuss Free Phones supply easy-use mobiles, and a telephony service that provides assistance making phone calls, which will put customers through to friends and family, the doctor or to help in an emergency – 24 hours a day and at the touch of a button. In addition, the telephony operators will screen incoming calls so only trusted contacts get through and nuisance calls cannot.

Find out more

CQC State of Care report 2016/17

From CQC:

‘State of Care is our annual assessment of health and social care in England. The report looks at the trends, highlights examples of good and outstanding care, and identifies factors that maintain high-quality care.

State of Care cover image

This year’s report shows that the quality of care has been maintained despite some very real challenges. Most of us are receiving good, safe care and many services that were previously rated inadequate have recognised our inspection findings, made the necessary changes and improved.

The fact that quality has been maintained in the toughest climate most can remember is testament to the hard work and dedication of staff and leaders. However, as the system continues to struggle with increasingly complex demand, access and cost, future quality is precarious.

Health and care services are at full stretch

The complexity of demand for health care and adult social care services in England continues to rise.

The number of people with complex, chronic or multiple conditions is increasing. We have an ageing population, and the total number of years people can expect to live in poorer health continues to rise.

These and other factors present different pressures in different parts of the system.

In cancer treatment, for example, there has been a fairly steady increase in the total number of people being treated following a GP referral, but they are having to wait longer for their treatment to start.’

Download copies here http://www.cqc.org.uk/publications/major-report/state-care

 

Payment Cards

Via      

Payment cards must support not restrict choice and control for users of direct payments: A new report from the Independent Living Strategy Group (ILSG), based on FOI returns from all English councils with statutory social services responsibilities reveals significant concerns about payment card practice and makes recommendations on how councils can properly comply with Care Act guidance.

Commenting on the report, Sue Bott, DR UK Deputy CEO said; “On the face of it pre-payment cards may seem a convenient way to pay for support but I have always had my concerns particularly because Councils can see when and where you have support which is an infringement of people’s privacy.  Interesting that this report finds that whilst councils insist on people with direct payments reporting on how the money has been used to the last penny; when it comes to knowing how much a pre-payment card service costs some of them are unable to say.”

 

Read more

Dates for the new Barrow Neuro Dropin Centre. 

Anyone living with a neurological condition, carers or family are welcome to attend.

Meetings take place starting at 11 am until 2 pm.  Tea, coffee and biscuits will be available.

We shall be adding regular updates as the programme develops. We hope in the near future that the groups will be held on every Thursday in the month but so far we are pleased to say that all but the second Thursday in the month are confirmed

November 2017 
Thursday 2nd November Run by Parkinson’s UK

Programme appearing soon

Thursday 9th November currently vacant
Thursday 16th November Run by Headway South Cumbria

Social drop in plus:

A session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 23rd November Run by MNDA 

Programme appearing soon

Thursday 30th November

Start 11 am

ALL welcome – open meeting to discuss ideas for the future programme and to share progress so far
Image result for neurological conditions Image result for neurological conditions
 December 2017
Thursday 7th December Run by Parkinson’s UK

Programme appearing soon

Thursday 14th December Currently Vacant
Thursday 21st December Run by Headway South Cumbria

Social drop in plus mince pies and a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 28th December NO MEETING
 2018
 January 2018
Thursday 4th January 2018 Run by Parkinson’s UK

Programme appearing soon

Thursday 11th January 2018 Currently vacant
Thursday 18th January 2018 Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 25th January 2018 Run by MNDA 

Programme appearing soon

 Image result for neurological conditions  Image result for neurological conditions
Dates February 2018
Thursday 1st February Run by Parkinson’s UK

Programme appearing soon

Thursday 8th February Currently vacant
February 15th February Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

February 22nd February Run by MNDA 

Programme appearing soon

March 2018
Thursday 1st March Run by Parkinson’s UK

Programme appearing soon

Thursday 8th March Currently vacant
Thursday 15th March Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 22nd March Run by MNDA 

Programme appearing soon

Thursday 29th March

Start 11 am

ALL invited.  This will be a review meeting to consider how the first months have developed

Any queries please contact cumbrianeurologicalalliance@gmail.com

HMRC suspends PA sleep in minimum wage enforcement for further month

HMRC suspends PA sleep in minimum wage enforcement for further month: HM Revenue and Customs is demanding the minimum wage and up to 6 years back pay for carers sleeping overnight.

Enforcement was initially suspended until 2 October 2017 but they have now suspended enforcement activity for a further month.

Disability Rights UK wants government to help individual PA employers so that they do not have to face cuts to their support to meet sleepover costs and arrears.  Disability Rights UK would like to hear from anyone who has received demands from HMRC for back pay for sleepovers.

Scotland bans private firms from doing disability benefit assessments

DR UK welcomes Scotland’s decision to ban private firms from doing disability benefit assessments: Ken Butler, DR UK’s Welfare Rights Adviser said “Both ESA and PIP are failing those disabled people who are wrongly being refused entitlement to it. There are several reasons for this…..But the origin of all these problems lies with the adequacy and accuracy of the Atos, Capita and Maximus assessments.” Read more