World Neuroscience Innovation Forum

This event is “designed for anyone with an interest in neuroscience” and “marks the beginning of a new way of approaching neuroscience and provides the opportunity to debate ideas, discuss the pros and cons of methodology and research, learn new points of view, and highlight strengths and weaknesses of current and future technology.”

Date: 27 March 2017, venue: Francis Crick Institute, London.

More details: World Neuroscience Innovation Forum

APPG on Primary Care and Public Health

The All Party Parliamentary Group (APPG) on Primary Care and Public Health is holding an “inquiry into Managing Demand in Primary Care: the case for a National Strategy”. A call for evidence has been issued, with a deadline for submissions of 3 April 2017.

Details are available online: http://www.pagb.co.uk/content/uploads/2017/02/Call_for_evidence_Final.pdf

The Migraine Trust will be submitting a response and the Alliance is currently drafting a submission.

Prescription charges survey

The Prescription Charges Coalition has launched a survey to find out how paying for prescriptions affects the lives of people with long term conditions in England. Please share this survey with your members so they can share the impact that prescription charges have on them, and their ability to take their medication as prescribed:http://surveys.parkinsons.org.uk/s/YS3LK/ The survey will close on 30 April 2017.

If your organisation is interested in knowing more about the Prescription Charges Coalition, please feel free to get in touch: prescriptionchargescoalition@gmail.com

APPG on Rare, Genetic and Undiagnosed Conditions

It has been announced this week that Ben Howlett MP, Chair of the APPG on Rare, Genetic and Undiagnosed Conditions, will be leading a Westminster Hall debate on ‘Implementing the UK Strategy for Rare Diseases’ on Tuesday 28 March, from 4.30 – 5.30 p.m. The debate represents an opportunity for MPs to highlight issues related to rare diseases. Members may wish to provide briefings to Ben Howlett or other interested MPs on issues that you would like to be raised with the Department of Health.

The Genetic Alliance UK acts as the group’s secretariat:https://www.geneticalliance.org.uk/appg

Brain Research Trust – call for grant applications

The Brain Research Trust has launched its first national call for project grant applications. The charity is looking to fund projects in these areas:

  • Acquired brain damage: research into interventions that promote recovery at the impairment level, particularly those that bring together enhanced plasticity or stimulation with rehabilitation
  • Neuro-oncology: research addressing the biology, treatment and diagnosis of primary brain tumours and associated neurological complications
  • Headache and facial pain: research addressing the fundamental causes, mechanisms and relief of headache and facial pain

The application deadline is soon – 29 March. Visit brt.org.uk/research-grants for details.

Case studies required for the National Neurological Alliance

Mental health report

As neurological conditions relate to the brain and nervous system, there is an increased complexity in the interaction between physical needs and broader emotional, cognitive and mental health needs. We have been working on a report examining the different aspects of living with and accessing treatment for mental health conditions if you also have a neurological condition. The draft report is being finalised and will be published later this year.

However, case studies would be a very useful addition to the report – can you please let me know if you have a case study for possible inclusion? Stories covering the following – either a positive story outlining where neurology patients have received good support to meet their mental health needs or a negative story, high-lighting the consequences of difficulties in accessing support for mental health – would be helpful.

For example:

  • Provision of good quality information and support which has enabled prevention and/or self-management
  • Access to therapeutic interventions or treatments which take account of the underlying neurological condition
  • Access to regular screening for emotional, cognitive and mental health needs
  • Working with a neuropsychiatrist or receiving a neuropsychiatric assessment

Contact Elaine.Cooper@neural.orguk

 

House of Lords – follow up to the January debate

Update from the Neurological Alliance

‘In following up the House of Lords debate on the progress the government has “made in improving neurological services in England”, called by Baroness Gale, we have secured a meeting with Lord O’Shaughnessy, Parliamentary Under Secretary of State at the Department of Health, on 4 April. We also have a pre-meeting with Baroness Gale and will be briefing her and some of the other peers who spoke at the debate in advance of the 4 April meeting.  We will update on the outcome of the meeting with the Minister in our next newsletter.

For those who may have missed the debate, the transcript is available online, as is our

briefing note.’

‘Dynamic Purchasing System’

This presentation was given by Aidan Quigley DWP and is shared via Cumbria CVS This is an important topic and worth downloading.

‘Dynamic Purchasing System’ is ‘an electronic process for setting up and maintaining a list of suppliers from whom social and other service provision can be procured locally as and when the need arises’.

 disability-confident-employer-pack-level-1 DPS Provider Letter 1 Final DPS Provider Letter 2 Final DPS the future of buying – Mental Health Forum

DPS Provider Letter 1 Final

DPS Provider Letter 2 Final

DPS the future of buying – Mental Health Forum