Month: September 2016

Integrated Care Communities

Useful post via Cumbria CVS

5 things you need to know about Integrated Care Communities

  1. Integrated Care Communities (ICCs) is one of the terms being used nationally and locally to describe the ambition to join up health and care services in a given community, tailored to the needs of the local population.
  2. An ICC will see health and social care professionals, GPs, the voluntary sector and the community working as one team within one system to support the health and care needs of population it serves.  It will focus on helping the population to manage long term health conditions and improve access to information about healthier lifestyles locally.
  3. Evidence shows that the most successful Integrated Care Communities will reduce the overall number of people who need to be cared for in hospital and improve the health and wellbeing of communities.
  4. The evidence is supported locally by early work in Millom and Carlisle that has shown that providing more care outside hospital, particularly for the frail and elderly, has led to faster recovery times and enabled more people to be treated at the same time.
  5. The leaders from all partners across the system including Cumbria Partnership NHS Foundation Trust, North Cumbria University Hospitals Trust, NHS Cumbria Clinical Commissioning Group, Cumbria County Council, & GP practices have made a firm commitment to develop integrated care communities and have started work together to provide better support to teams locally, many of whom are already using principles of integrated working in providing care.
  6. West, North & East Cumbria has been divided into eight Integrated Care Communities to align with clusters of GP practices and their registered populations.  Three Integrated Care Communities managers have been appointed to work across all the organisations in West, North & East Cumbria to support the development of ICC’s with a specific focus on 3 ‘Early Implementer areas’ – Workington, Cockermouth & Maryport and Eden.


If you only have time to do one thing, please view this animation of ‘Sam’s Story’, that describes the thinking behind the Integrated Care Communities:



Healthcare for the Future – West, North and East Cumbria Consultation

On 26 September 2016 at 14:45, Stephen Hall <> wrote:

“Dear Colleague,

Today marks the launch of the public consultation into possible changes to health services in West, North and East Cumbria.

The consultation document, ‘Healthcare for the Future’ includes information about the various options and how you can submit your views.

You can find a digital version of the consultation questionnaire and a number of supporting documents on our website (

The consultation will last until just before Christmas 2016 and we hope to encourage as many people as possible to express their views on the various options.

Throughout the consultation we will be holding a number of public meetings and other events to further listen and engage with communities which may be affected by change.

No decisions have been taken and nothing is predetermined. We are open to the views of the community and look forward to hearing your thoughts and ideas over the coming months.

Yours sincerely,

Sir Neil McKay

Programme Board Chair

West, North and East Cumbria Success Regime”

Leading Wellbeing in Rural Contexts – ONE DAY CONFERENCE

Organised jointly by the Brathay Trust and University of Cumbria

1 November 2016, University of Cumbria, Ambleside campus

Supporting wellbeing in an environment where providers (public, private, third sector, individuals and volunteers) are more professionally isolated requires different ways of working.

This one-day conference turns the spotlight onto the unique challenges presented, as well as providing a forum for exploring responses and opportunities. The conference showcases good practice case studies from cross-sector contexts, including health and social care, uniform services, education and enterprise to name a few.

A framework developed by the Cumbria Rural Health Forum will help us explore diverse practices, in order to draw out generalizable responses and learning for common challenges in rural contexts. These include access, community engagement and resource mobilisation. This will lead to Open Space discussions to ensure critical themes provide important learning to take away for wider sharing and application. This process contributes to an emerging rural cross-sector forum for ongoing networking, resources and communication.

9am Arrival and coffee

9:30 – 9:45 Welcome and introductions

9:45 – 11:00 ‘The challenges of leading wellbeing in rural contexts’

11:00 – 11:30 Coffee and networking

11:30 – 13:00 Open Space session 1

13:00 – 14:00 Lunch

14:00 – 15:30 Open Space session 2

15:30 – 16:30 Closing circle

16:30 Close

Call for papers: The conference will also coincide with the launch of a call for papers for a special issue of The Journal of Corporate Citizenship (JCC) published by Greenleaf. The issue will focus on the themes of leadership, wellbeing and rurality. We welcome ideas from you on the day.

To book your ticket, please see our online store. £50 full price. £20 concessions. 

Concessions will be for; Voluntary Sector workers, Students, Unemployed.

A limited number of complimentary tickets are available to students, voluntary sector and unemployed, please

For more information: please contact Martin Pyrah/IFLAS on 015394 30228 or

Martin Pyrah
Admin Assistant
Institute For Leadership And Sustainability (IFLAS)
University of Cumbria
Ambleside Campus
Rydal Road
Ambleside  LA22 9BB
Tel: 015394 30228 (Ext 5228)


IFLAS on Twitter: @IFLASinfo

IFLAS on Facebook: @IFLAS – Institute for Leadership and Sustainability

IFLAS Webpage:

NHS England – Specialist commissioning – Neurosciences Clinical Reference Group

We are delighted that Alex Massey has been accepted as a Patient and Public Voice member of the new Neurosciences Clinical Reference Group on behalf of the Neurological Alliance.

The new CRG has been restructured following a consultation exercise earlier this year, to which the Neurological Alliance responded. The first meeting of the restructured CRG, which combines both neurosciences and neurosurgery, is scheduled to take place on October 6th 2016.

Key priorities for the Alliance in relation to the work of the CRG include:

  • Pushing for the group to resume work on the service specification as a matter of priority, in order to produce a revised specification as quickly as possible.
  • Ensuring that there is a balance between work on neurosurgery and on neurology within the CRG. As neurosurgery is a highly specialised area of activity, there is a risk that it may dominate agendas and leave little time for wider neurological issues.
  • Pushing for resumption of work on developing an algorithm for use of disease modifying drugs for MS, which was begun by the CRG prior to the restructuring. Aliex will liaise regularly with members to ensure that we are kept up to date on the work of the CRG, and we will have an opportunity to input views and evidence into all relevant decisions and processes.

‘Alterline in a Box’ New training resource

The Brain Tumour Charity recently produced an new training resource ‘Alterline in a Box’ which links with the findings from their ‘ Losing Myself: the reality of life with a brain tumour’ report

The training can be incorporated into team meetings and Helen Hills can explain more about the different support and information options that The Brain Tumour Charity can offer. If any teams are interested please give her a call  07710 709 440 or if you need any of their resources, leaflets or Newly Diagnosed packs please let her know.


Helen Hills Operations Manager, North Mobile 07710 709 440

 Hidden in plain view – 5th Conference hosted by TVDNY Neurological Alliance

 You are invited to the 5th Conference hosted by TVDNY (Tees Valley, Durham and North Yorkshire) Neurological Alliance to share knowledge, improve understanding of neurological need and inspire co-production of community-based care.

 Middlesbrough Football Club Riverside Stadium on Friday November 25th 2016 from 09.30am to 4.00pm

There are places for people with a neurological condition or anyone who is a caregiver.

For more information please contact the Neurological Alliance: 01642 641825 Email;

Caldicott data review

Following the Caldicott data review the NHS are holding stakeholder data events.

If you would like to get involved or know of any people affected by brain tumours who would be interested please can you share this with them.

District Councils are the missing piece of the STP jigsaw


An interesting blog shared by Cumbria CVS written by Cllr Michelle Lowe (Deputy Leader and cabinet member for Housing & Health at Sevenoaks District Council) who reflects on the lack of district council involvement in Sustainability and Transformation Plans (STP). Michelle makes some interesting points about the importance of housing, Disabled Facility Grants and environmental health teams in preventing hospital admissions and helping people get back home from hospital sooner.

Read at:

Sharing Knowledge – North East & Cumbria (run by In Control and Inclusion North)

The course is free and will run over five two-day sessions between October 2016 and February 2017.

What is Sharing Knowledge about?

This is a new course for the North East and Cumbria area which will identify, train, support and sustain a network of people – citizen leaders – who believe that things can be better for disabled people and their families. The course will take place against a backdrop of ‘self-directed support’.

The course is designed for vulnerable people, their parents/relatives and people who support them through their work in social care, health and education in the North East and Cumbria. By ‘vulnerable’ we mean people with learning disabilities, sensory impairments, physical impairments, people with long-term or serious health issues (physical and mental) or people with a learning disability who are at risk of exclusion and need support in order to live happy and healthy lives.

Sharing Knowledge is about building new alliances which will become powerful and make real differences to the future of vulnerable people. The programme will build on work already done across the area through investing in parent/carer and self-advocate leadership and will contribute to more effective partnership working.

It will provide information and build participants’ skills so that they gain the knowledge and confidence they need to campaign and advocate for a better future for themselves and other vulnerable people in our society. A strong values base of inclusion and equality underpins the programme. Participants will be listening, learning, planning and creating together.

Who is Sharing Knowledge for?

 They want people to apply for a place on the course who have first-hand experience of issues that affect vulnerable people and their families. People who think that life for people who need extra support could be better and who want to improve the way things are now – but don’t always know where to start.

There will be 35 place available. To be eligible to apply, you must also either be a resident in the North East or Cumbria, or be involved in providing support to someone who is a resident. This could also be a person working in social care, education, health or leisure.

Looking for people who are:

  • Passionate about everyone’s right to be included as full citizens in local community life.
  • Committed to action.
  • Committed to working with other people to make life better for vulnerable people who need extra support.

The Course Programme

The course is residential and runs over five months from October 2016 to February 2017. The session’s run on two consecutive days, once a month. Each session will run approximately from 9:30am until 5:00pm.

Course participants will learn about:

  • The history of social care and why things are the way they are.
  • Person centred planning and support planning.
  • What’s possible and practical.
    • Getting the right support, rites of passage and peer support.
    • Communication and assistive technology.
    • Housing options and innovative respite.
    • Dispelling the myths about Autism and Asperger’s syndrome.
    • Health and postural care.
  • Being in control of the care that you need.
  • Understanding and relating to the system locally, making change happen and making plans for the future.

For an application pack and more information, please contact:

 In Control Support Centre

Carillon House Chapel Lane Wythall B47 6JX Email:

Tel: 01564 821 650

The Neurology and primary care report from the Neurological Alliance

The report was published on the NA website on Monday 15th August at the following link:

The Neurology and primary care report presents the results of a survey of 1,001 regionally representative GPs from across the UK (England, n=831), as well as an expert workshop convened to discuss the findings in December 2015. It follows on from the findings of the 2014 patient survey, which showed major delays affecting the primary care pathway for neurology.

The poll findings clearly show that GPs lack confidence in the primary care pathway for people with neurological conditions. It shows that the majority of GPs do not have faith in the ability of local services and systems to manage neurology patients effectively. It also suggests that GPs feel they would benefit from more training and guidance to manage people presenting with suspected neurological symptoms.

  • 85% (n=708) of GPs in England are either ‘somewhat concerned’ or ‘extremely concerned’ about the time taken from referral for patients to see a consultant neurologist.
  • The large majority of GPs in England (84%, n=701) feel that they could benefit from further training on identifying and managing people presenting with neurological conditions.
  • 59% (n=492) of GPs believe that the local services and systems in place in their area mean that people with neurological conditions frequently do not receive a timely diagnosis.
  • Fewer than half of GPs polled (47%, n=392) felt confident in their ability to make an initial assessment and referral for people presenting with signs and symptoms of multiple sclerosis.

The report also sets out eight key recommendations for improving the primary care pathway for people living with neurological conditions, including a call for the development of a pan-neurological ‘watch list’ of the ten signs and symptoms GPs should be aware of during patient interactions in primary care settings.

Please note that the report focuses primarily on England as that is the NA remit; however, GPs in all UK nations were surveyed and additional UK analysis is included in the appendix.