Month: October 2016

NICE update -Technology appraisals and highly specialised technologies

NHS England and NICE have jointly launched consultations on NICE’s Technology Appraisal and Highly Specialised Technologies programmes.

More information available on the proposed changes and how to respond is available here. The consultations will close on 13th January 2017. If you would like to highlight any issues related to these consultations please contact to discuss further.

New ‘Right Care’ packs

NHS England’s ‘Right Care’ programme has released refreshed ‘where to look’ packs for October 2016 to CCGs in England. These are a refresh of the Commissioning for Value Where to Look packs, last published in January 2016.

The packs identify condition areas where there are opportunities to improve value and outcomes for CCGs, including neurology in many cases. For more information

Consultations on generic commissioning policies

NHS England has released consultations on new generic commissioning policies: in-year service developments, individual funding requests, funding experimental and unproven treatments, and continuing funding after clinical trials. These policies relate to four distinct NHS England processes for funding treatments which are not currently routinely commissioned or subject to a mandated guidance from NICE. The consultations will be open for three months and details of all four consultations are available on NHS England’s website.

The deadline for these consultations is 15th January 2017. The Neurological Alliance will be preparing responses and would be grateful for any views or relevant evidence from members.

Please send to by November 31st.

New Neurological Alliance national chief executive

We are pleased to welcome a new national Chief Executive, Sarah Vibert. Sarah joins the NA from the Epilepsy Society, where she worked as Director of Strategy and External Affairs. There she was responsible for strategy, business development, partnerships, policy, user involvement, and communications. Prior to working at Epilepsy Society, Sarah held a number of management roles in the charity sector and local government, including working in policy and strategic projects for the Mayor of London and in the Charities Office of HRH the Prince of Wales.

Sarah replaces Arlene Wilkie, who after more than five years at the helm of the Alliance, has moved on to be Chief Executive at the Migraine Trust.

Invitation from Eden Valley Hospice 28th November

Posted for the Eden Valley Hospice

Calling Health Professionals

You are invited… to a buffet lunch in the Day Hospice on Monday 28 th November 12.30pm – 2.30pm

This is an opportunity to visit the hospice and discover more about the services available. To include information on: Referral Criteria and Hospice Services

For further details please contact 01228 817623 or email RSVP by 21st November for lunch numbers.

A certificate of attendance will be issued.


Neurology services: hospital activity compendium

Sent on behalf of Public Health England’s Neurology Intelligence Network

Neurology services: hospital activity compendium

Data analysis of neurology hospital activity in England 2012 to 2015 

The neurology intelligence network is pleased to announce the publication of a new data resource; the neurology services hospital activity compendium.  The compendium shows summary level data (counts and percentages) at a national level on the hospital activity of people admitted with a neurological condition. Where possible, these national level data are also provided at a CCG level.

By making this data available it is hoped that analysts, policy makers, clinicians, commissioners and charities involved in the provision of services for people with neurological conditions will be able to undertake further exploration of the information included and begin to uncover the rich detail that the product contains.

The data tables for England show data for three financial years (2012/13, 2013/14 and 2014/15):

Hospital admissions – numbers of admissions by neurological condition group

  • Emergency hospital admissions – numbers of emergency admissions by neurological condition group
  • Subsequent hospital episodes – finished episodes following an emergency admission by neurological condition group
  • People in treatment – all admissions and new admissions by neurological condition group
  • Hospital discharges – all inpatient admissions, emergency admissions and emergency admissions under the care of a neurologist by neurological condition group and length of stay in hospital

The network plan to develop further extracts of this dataset in accordance with the identified needs of end users. We would very much appreciate feedback on the scope of this future work; if you have any suggestions on what these future extracts should contain please submit them via email to

Next meeting – Wednesday 9th November 2016 10.30 am

You are invited to our next OPEN meeting which will be at

A Chance for Life Ltd
5 Hobson Court
Gillan Way
Penrith Business Park
CA11 9GQ

The meeting will start at 10.30 am, until 1 pm.  All are welcome but please note that you should park at the North Lakes hotel, directly over the dual carriageway.

We are delighted to welcome Aidan Quigley, Disability Employment Specialist, Dept for Work & Pensions (DWP).

Aidan will talk about his role, ‘Towards Full Employment’, Universal Credit and Welfare Reforms.

This is an opportunity for people living with a neurological condition, their family or carers to come along and ask those benefits questions for which you need an answer.