APPG on Rare, Genetic and Undiagnosed Conditions

It has been announced this week that Ben Howlett MP, Chair of the APPG on Rare, Genetic and Undiagnosed Conditions, will be leading a Westminster Hall debate on ‘Implementing the UK Strategy for Rare Diseases’ on Tuesday 28 March, from 4.30 – 5.30 p.m. The debate represents an opportunity for MPs to highlight issues related to rare diseases. Members may wish to provide briefings to Ben Howlett or other interested MPs on issues that you would like to be raised with the Department of Health.

The Genetic Alliance UK acts as the group’s secretariat:https://www.geneticalliance.org.uk/appg

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