Month: June 2017

Accessing your patient records

Have you accessed your records yet? If you want to see how Dr Amir Hannan’s practice has enabled patients take a look at his website

Follow him on Twitter @amirhannanDr Amir Hannan

Patients have had the right to read their paper records since the 1990s. However, few ever choose
to do so unless there is a problem or a complaint, perhaps in part due to procedural and physical
constraints. With the widespread use of electronic records, it is now much more feasible for
patients to access their own records directly. This presents new challenges and opportunities for
health professionals.

This document has been created primarily by the doctors who pioneered the work to enable
patients to access their own electronic health records. The doctors have explored the opportunities
for people not just to read their records but also to enable them to better look after their own
health, interacting positively with the healthcare system.

It is important that all health professionals understand that new ways of working with patients
become possible with electronic records. However, it is essential to apply these new ways safely
and effectively. This document offers sound principles, developed in conjunction with lessons
learnt, to underpin such changes in clinical practice.

Record Access provides most benefit if used as an integral part of the care process. If patients
access their records, particularly in the context of joint decision-making in partnership with their
health professionals, the result can lead to improvements in their care.

Record Access is a new development and this guidance is intended to be a dynamic document
that will evolve as more experience is gained.

Dr Libby Morris, Chair, RCGP Informatics Group
Dr Bob Milne, Deputy Chair, RCGP Informatics Group
1 September 2010

Check out this link Health Informatics Report (1)


CQC’s next phase of regulation

CQC consultation on next phase of regulation

Take part in second next phase consultation

care quality commission

The independent regulator of health
and social care in England

Update on our next phase of regulation

Take part in our new consultation and find out about the changes we’re proposing

Mother and child with GP

The health and social care landscape is changing. We want your views on how we can continue to develop a more targeted, responsive and collaborative approach to regulation.

We’ve now published the response to our December consultation on our next phase of regulation. Visit the website to read it and the related guidance documents we’ve produced.

We’re also launching a second consultation today. It includes new proposals for how we’ll regulate primary medical care services such as GPs and dentists and adult social care services like care homes and home-care services.

We’d love to hear your views. You can take part in our second consultation online. It’s open until 8 August 2017.

Man reading newspaper icon

Read the news story

Person using computer

Take part in the second consultation


Download the response to our first consultation

Disability Benefits Consortium benefits survey 2017

The Disability Benefits Consortium (DBC) is a national coalition of over 80 different charities and other organisations committed to working towards a fair benefits system for disabled people, people with long-term conditions and their carers.

This survey will ask you about Employment and Support Allowance (ESA), Personal Independence Payment (PIP) Attendance Allowance (AA) and Universal Credit (UC). However, you will only be asked about the benefits you’ve applied for.

Your responses will remain anonymous, unless you offer to be contacted further to support our campaigning work. Your anonymous responses will not be shared and will only be used by the Disability Benefits Consortium and its members to campaign for improvements to the benefits system.

The more responses they get, the more effective they can be in challenging government. So please spread the word and encourage clients to complete the survey – it takes between 10 and 30 minutes. Go to survey


Public Health England

The Neurological Alliance has heard from Public Health England that with effect from 1 June 2017 there will be a few changes within the organisation – the existing PHE intelligence networks (including the National Mental Health, Dementia and Neurology Intelligence Network) will now sit within a new Health Improvement Directorate within the PHE’s Knowledge & Intelligence Service.

According to PHE, these new arrangements are “intended to help PHE respond to the changes underway in the NHS and local government.”

They have also made some changes to their online presence – it might be useful to bookmark this page if you regularly refer to their resources:


Specialised Healthcare Alliance (SHCA) update

A number of members of the SHCA, including the Neurological Alliance, co-signed a letter to urge the three main political party leaders to reverse the recent NICE access to treatment reforms and guarantee that any future reforms will be considered by Parliament before being implemented. The letter was finally issued as an open letter to all the party leaders and published in The Telegraph.

Sarah Vibert, chief executive, Neurological Alliance, said: “Politicians from all sides should pledge to rethink these damaging proposals. It is completely unacceptable that patients with neurological conditions risk being denied access to treatment solely on the basis of cost.”

The Telegraph article can be found here:


Going the Distance Report update

Going the Distance

The up-dated version of the Neurological Alliance ‘Going the Distance report’, first published in 2014, will be launched at the Community Neurology 2017 event in June. The NA has teamed up with Sue Ryder for the 2017 version of this report, which will include their analysis of the extent to which neurology is prioritised in the 44 STPs.

Copies of the new Going the Distance reported will be shared with all members next month.

General Election update 2017

The three main parties have also published their manifestos. As you would expect, each of them feature plans for the NHS quite heavily, although the consensus seems to be that none of the published policies properly address the funding gap. National Voices has examined the health and care commitments in each manifesto and their analysis can be found here:

This Guardian article also gives a good overview of what’s been published re. plans for the NHS:

What do the party manifestos mean for the NHS?