Month: September 2017

Up-date from the Encephalitis Society

The Encephalitis Society has a number of awards open to members. These include:


They are also looking for keynote speakers for the Encephalitis Conference being held in London on 4 December 2017. Information about how to submit an abstract can be found here:


UK Acquired Brain Injury Forum’s 9th Annual Conference

UKABIF’s next annual conference – Navigating the future for brain injury survivors: Health, rehabilitation and beyond – is being held on 13 November 2017 in London.

There are early bird rates on offer until 31 July. The programme and registration form can be found on the UKABIF web site.

Neuroscience R&D Technologies Conference

The 3rd Annual Neuroscience R&D Technologies Conference is to be held on 28 and 29 September 2017.

Venue: Radisson Blu Edwardian Hotel, Heathrow, London. The conference aims to focus on sharing technological advancements and future challenges in pre-clinical neuroscience research where experts from the pharma industry and research institutes will discuss the latest technologies in neuroscience R&D.

More information:

Brexit Health Alliance

National Voices, the coalition of charities focusing on person-centred health and care, is a founding member of the new Brexit Health Alliance, a group of organisations convened by the NHS Confederation to consider the implications of Brexit for healthcare. The Brexit Health Alliance has identified five key issues on which they will be pressing Brexit negotiators on both sides:

  • Research & Innovation
  • Aligned Regulation
  • Reciprocal Healthcare
  • Public Health
  • Funding

The potential loss of doctors, nurses and other key staff if EU workers is also a major concern of National Voices, as well as many Alliance members. Work on this is being led by a separate group, the Cavendish Coalition, which involves employers, trade unions and professional bodies from health and social care.

The latest blog from National Voices on the potential implications of Brexit can be found here: This page also has a link to a more detailed briefing on the five key issues mentioned above. More information on the Brexit Health Alliance, including a list of members, can be found here:

Sustainability and Transformation Partnerships (STPs) dashboard

At the end of last month NHS England published an STP “dashboard”. According to their announcement, this should give “an initial baseline assessment of the new sustainability and transformation partnership areas – set up across the country to improve care through collaboration between services.”  It is a prototype “progress dashboard – which will continue to evolve – indicates the starting point from which STPs will drive improvements in care”. The full data is available on the NHS England web site:


The rating is driven by indicators in three broad areas: hospital performance, patient-focused change, and transformation. These are measured in nine domains: emergency care; elective care; safety; general practice; mental health; cancer; prevention; finance and system leadership. It will be interesting to examine these against the responses we get from STP leaders following our exercise to contact them all earlier this year about their plans for neurology services.


It was also confirmed that there will be local capital investment schemes in 15 areas of the country, with the largest sums being used for urgent care in Dorset, surgery in Greater Manchester and cancer care in Cumbria. According to NHS England, this initial funding has been targeted at the “strongest and most advanced plans put forward by local health and social care leaders.”

Other NICE updates

Mentioned previously but still ongoing – NICE are producing guidance on using cladribine tablets for treating relapsing-remitting multiple sclerosis in the NHS in England. They are inviting organisations to take part in the appraisal to produce the guidance; to submit evidence, nominate experts, comment on consultation documents produced during the appraisal, and appeal against the final recommendation. More details here:


NICE are also updating or developing guidelines on the following topics:


Suspected neurological conditions: Draft guidance consultation


You can now review and comment on this draft guideline.

The consultation closes on 19 September 2017 at 5pm

How to comment

1. Register your organisation

Your organisation needs to be registered as a stakeholder before we can accept comments.

Not eligible? Contact the stakeholder organisation that most closely represents your interests and pass your comments to them.

2. Read the consultation documents

Documents to comment on:

Other information about the consultation

3. Add your comments

  • You must use this comments form.
  • You must declare any links with, or funding from, the tobacco industry

If you share similar views with another organisation, send a joint response.

Make sure you consider:

  • The areas that will have the biggest impact on practice and be challenging to implement
  • How to help users overcome challenges

Developing NICE guidelines: how to get involved suggests some other areas to comment on.

4. Email the form to us


Deadline: 19 September 2017, 5pm

Social work research

Social workers needed to support with health and wellbeing research and receive a £25 gift voucher:Disability Rights UK has partnered with University of Birmingham and Sport England to develop evidence based guidelines to help social workers to have conversations with disabled people in receipt of social care support (personal budgets and direct payments) about how and where to be physically active and importantly why. Find out more about contributing