Author: CumbriaNeurologicalAlliance

Aiming to raise awareness and understanding of neurological conditions to ensure that every person diagnosed with a neurological condition has access to high quality, joined up services and information from their first symptoms, throughout their life.

CQC Local System Review of Health and Social Care in Cumbria

In February 2018 the Care Quality Commission carried out a Local System Review of Health and Social Care in Cumbria.

The purpose of this review was to understand how people over 65 move through the health and social care system with a focus on the interfaces between services and it is one of 20 targeted reviews taking place across the country.

The review report has been published by the Care Quality Commission and is available on their website: http://www.cqc.org.uk/news/releases/cqc-publishes-review-how-local-health-social-care-systems-work-together-cumbria

The next step is to develop a plan which sets out how the local system will implement the recommendations. Cumbria CVS would like to involve you in helping to shape this plan before it is agreed by the Health and Wellbeing Board. They are holding three workshops on the following dates:

 

11 June 2018              9:30 – 11:30                The Oval Centre, Workington

12 June 2018              9:30 – 11:30                Botcherby Community Centre, Carlisle

14 June 2018              9:30 – 11:30                Castle Street Community Centre, Kendal

The objectives of these sessions are to:

  • share the findings of the system review, update on progress that has already been made and the next steps
  • discuss and shape the action plan for Cumbria

We would be pleased if you could attend one of these sessions. To confirm your attendance please email cqcsystemreview@cumbria.gov.uk by Friday 8 June 2018 confirming your details and which session you are attending.

Kind regards

Jozi Brown  Senior Engagement Officer   Cumbria CVS

 Shaddongate Resource Centre     Shaddongate    Carlisle    Cumbria CA2 5TY

 Tel: 01768 800350    Email: jozib@cumbriacvs.org.uk

  www.cumbriacvs.org.uk

  Registered Charity No: 1119671

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Self Management Framework

Update from Jo Cole

Neuro Key were co-authors with Teesside University for some research into self-management in 2017, presented to a multi-disciplinary audience in October 2017 and the Tees-wide Neuro Forum.

Pleased to let you know that our paper, “Finding Meaning and Purpose”: A Self-Management Framework for Long Term Neurological Conditions’ has been accepted as an Empirical Oral Presentation at the Division of Health Psychology Annual Conference in Newcastle on 5th September 2018.

Full programme at the British Psychological Society website; www.bps.org.uk/dhp2018

Joanne Cole Head of Operations

Neuro Key

Tel;               01642 641825

Email;           jo.cole@na-tvdny.org.uk

Web;             www.na-tvdny.org.uk

Facebook;    NeuroKeyTVDNY

Twitter;         @NA-TVDNY

Next meeting Cumbria Neurological Alliance 14th June

The next meeting of the Cumbria Neurological Alliance will be on Thursday 14th June at 10.30 am until 1 pm at A Chance for Life, Penrith.
Unit 5/Hobson Court/Gillan Way/Penrith 40 Business Pk, Penrith CA11 9GQ
Please park over the road at the hotel as parking is now very tight outside the office.
This meeting is also the AGM so please consider if you would like to stand for the committee and drop me an email if you would like to at cumbrianeurologicalalliance@gmail.com

Consultation on proposals for a new statistical series to count unemployed claimants

Consultation on proposals for a new statistical series to count unemployed claimants: Universal Credit produces a higher claimant count than JSA.

This new consultation wants your views on ways to reduce this number by excluding certain groups, including claimants awaiting a work capability assessment.

The consultation closes 11:45pm on 21 July 2018. Go to consultation

Funding pressure on NHS and social care set to grow

Funding pressure on NHS and social care set to grow: This Institute for Fiscal Studies (IFFS) report finds that UK spending on healthcare will have to rise by an average 3.3% a year over the next 15 years just to maintain NHS provision at current levels, and by at least 4% a year if services are to be improved.

Social care funding will need to increase by 3.9% a year to meet the needs of an ageing population and an increasing number of younger adults living with disabilities. It will need to increase by more to accommodate much needed social care reform. Read more

Scope report highlights negative public attitudes towards disabled people

Help improve Transreport’s new Passenger Assist app

The Transreport Passenger Assist app enables users to engage with rail operators and request assistance for their entire journey – the aim is to improve the quality, detail and speed of information to better provide assistance from operators.

DR UK hopes to continue to support Transreport through the development and launch of the app.

Jason Jaspal from DR UK said, ‘accessible travel is clearly a key component to people living independent lives – and when developing products and services in this space it is crucial that disabled people have the opportunity to contribute at the design and development stage’. See how you can help

Scrapping prescription charges can save money

New research by York Health Economics Consortium shows that scrapping prescription charges for people with Parkinson’s and inflammatory bowel disease would save the NHS money. The Prescription Charges Coalition (PCC) is calling on the Government to urgently reform the prescription exemption criteria in England, and make prescriptions free for people living with long term conditions. Disability Rights UK is a member of the Coalition.

Sign up to the PCC mailing list if you’d like to get involved.

Sign the petition to scrap prescription charges for people with long-term conditions

SSAC report on young people living independently

This Social Security Advisory Committee (SSAC) report examines the effect of the support provided through the benefit system to young people living independently. These young claimants often have no or little access to financial support outside the benefit system and so feel the effect of welfare changes more than young people living with their parents or other guardians.

DR UK contributed to this report. Read report recommendations