Author: CumbriaNeurologicalAlliance

Aiming to raise awareness and understanding of neurological conditions to ensure that every person diagnosed with a neurological condition has access to high quality, joined up services and information from their first symptoms, throughout their life.

Events 2018

• Encephalitis Conference, 4 December 2017 in London.
• Next steps for NICE: funding, quality and adoption, 11 January 2018 in London.
• Improving access to medicine: pricing, regulation and implementing the Life Sciences Industrial
Strategy, 1 March 2018 in London.
• 21st World Congress on Neurology and Therapeutics, March 2018 in London. The theme will be
Exploring the Recent Innovations and Novel Therapies in Neurology and Neuroscience.
• 7th International Conference on Brain and Neurological Disorders,10 – 12 April 2018 in
4th World Congress on Rare Diseases and Orphan Drugs, 11 – 12 June 2018 in Dublin.
• 3rd International Conference on Paediatric Neurology, 20 – 21 September 2018 in Lisbon.



2018 Healthcare Science Awards

This month NHS England opened the applications portal for their Healthcare Science Awards.
For the 12th year running, this award celebrates the developments being made by healthcare
scientists in their services across the NHS. To apply or to find out more click here.

The deadline for applications is 22 December 2017.


Personalised Health and Care 2020

Last month the Department for Health, in conjunction with the National Information Board published
Personalised health and care 2020: service user vision.

This report explores how changes in digital technology aim to improve patient, carer and service user experiences of health services in England.


Accelerated Access Review

The Department of Health and the Department for Business, Energy & Industrial Strategy have
released a joint response to the Accelerated Access Review (AAR), setting out how government will
improve patient access to breakthrough technologies and treatments.

The AAR made a series of recommendations to enable the NHS to: improve patient outcomes; use the UK’s strong biosciences research and life sciences industrial base, and; enhance the international competitiveness of our life
sciences industry.

Download the report at

The AAR made a series of recommendations to enable the NHS to:

  • improve patient outcomes
  • use the UK’s strong biosciences research and life sciences industrial base
  • enhance the international competitiveness of our life sciences industry

The response to this review sets out how government will work with industry and the health system to create an approvals system so that cost-effective breakthrough products can get to NHS patients as fast as possible.

Key elements of this response include:

  • an Accelerated Access Collaborative that will develop an accelerated access pathway to bring breakthrough products to market and then to patients as quickly as possible
  • £86 million government funding to support innovators and the NHS in overcoming barriers to getting new, innovative technologies to patients quickly
  • improved NHS England commercial capacity and capability to deliver deals that achieve better value for the NHS and innovators

Social Care Spending

NHS Digital

Social care spending up £556m as costs also rise: On 25 October NHS Digital announced
that annual spending by local authorities on social care rose by £556 million in 2016/17 to £17.5

Also published by NHS Digital is Adult Social Care Outcomes Framework (ASCOF). Findings of this report include:

  • The proportion of adults with a learning disability in paid employment has fallen each year over the last three years, from 6.0 per cent in 2014/15 to 5.8 per cent in 2015/16 and then 5.7 per cent in 2016/17.
  • The proportion of adults with learning disabilities in paid employment varies across English regions. London (7.2 per cent) and Eastern (7.1 per cent) have the highest proportion; North West, East Midlands and West Midlands have the lowest at 4.2 per cent.

NHS Digital • New innovation in digital standards

New innovation in digital standards to improve child health information:

NHS Digital have launched new digital standards which will enable everyone involved in a child’s care,
including parents, to access a standardised set of paperless, digital child health records.

• Report shows prevalence of key conditions across England: At the end of last month
NHS Digital announced this report, which includes prevalence information on 21 condition
including Dementia, Depression, Epilepsy and Mental Health. You can read the full report here.

NHS Digital


Appointment of Neurological Alliance Chief Executive – Maternity Cover

Appointment of Neurological Alliance Chief Executive Maternity Cover
We are delighted to have appointed Joe Korner as maternity cover for our Chief Executive Sarah
Vibert.  Joe has worked in the charity sector for over 30 years, including as Director of External
Affairs at the Stroke Association for ten years until 2015.

Joe’s time at the Stroke Association saw the charity win important campaigns such as the creation of a National Stroke Strategy; the creation of acute stroke units across the country; and the FAST (Face, Arm, Speech, Time)
advertisements raising awareness of stroke symptoms.

Joe starts at the Alliance on 15 January, and will be at the AGM and December policy group meeting. We will share contact details shortly.

All Party Parliamentary Group for ABI

Paul Brown contacted us, secretary for both the Northern Acquired Brain Injury Forum (NABIF) and UK Acquired Brain Injury Forum (UKABIF) with some good news – the All Party Parliamentary Group for Acquired Brain Injury was formally established last month was formally launched in Parliament on the 28th November.

We would like to get more MPs involved in this group and therefore ask that you send the attached letter template to MPs within your constituency to encourage them to join the APPG.

In order to find out who the MP in your constituency is, simply follow this link, and enter your postcode in the ‘Keywords’ box:

The United Kingdom Acquired Brain Injury Forum (UKABIF) aims to promote better understanding of all aspects of ABI; to educate, inform and provide networking opportunities for professionals, service providers, planners and policy makers and to campaign for better services in the UK.

An Acquired Brain Injury (ABI) is brain damage caused by events after birth and can result in cognitive, physical, emotional, or behavioural impairments leading to permanent or temporary changes in functioning. Exact figures are unknown, but a very low estimate is that over one million people live in the UK with the effects of ABI at an estimated minimum cost of £4.1 billion.

UKABIF is a membership organisation and charity, established in 1998 by a coalition of organisations working in the field of ABI.

You can read more about the work of UKABIF at