Campaigning

We work with range of brain and spine charities, networks and forums to campaign locally and nationally for better services.  We are active on twitter @cumbrianeuro Do follow us and share our news.

About our work …

We want to work with health and social care commissioners and providers of services  to enhance the understanding of the needs of people across the whole of Cumbria who are living with a neurological disease.

We’re here to make a difference.

Our work in 2017 includes contributing to the work of the Success Regime and Better Care Together to improve pathways and services.

You can read more at http://www.successregimecumbria.nhs.uk/ and https://www.uhmb.nhs.uk/strategy/

We also aim to attend as many Integrated Care Communities as possible, across the county.  Check out these websites for details

INTEGRATED CARE COMMUNITIES WILL PLACE HEALTH AND WELL-BEING AT THE HEART OF OUR COMMUNITIES

Published: 27th September 2017

 Work to improve the overall well-being of local people is underway through the development of eight Integrated Care Communities across West North & East Cumbria.

The Integrated Care Communities will work together to improve the overall health and wellbeing of local people by joining up local health and care services, bringing more care out of hospital and into the communities and people’s homes, and supporting people to manage their own health conditions.

The ICCs are being developed in response to the changing needs of the population which the current system is struggling to cope with.  The ambition will see health and social care professionals, GPs, the voluntary sector and the community working together in each Integrated Care Community as one team to improve the health and wellbeing of local people.  They are focusing on helping people to manage long term health conditions, improve access to information about healthier lifestyles and providing more care in the community and at home.

Stephen Eames, Lead for West, North and East Cumbria Health and Care Partnership, explains:

“We know that the current system isn’t working and things need to change to put Cumbrian people at the heart of our health and care services.   Joining up health and care services is one of the ways we are planning to do this.

“Current services tend to focus on ill health rather that supporting people to stay well but ICCs will change that. A key element of their success will be working with local communities and supporting them to take a more active role in their health and wellbeing.

New ways of working have already included community teams joining up with North West Ambulance Service (NWAS) to help keep people out of hospital and musculoskeletal practitioners working in GP practices to ensure people with problems such as back pain can be seen quickly, by the right person. Work is underway to identify frail and elderly patients and put steps in place to prevent falls before they happen.

Dr Niall McGreevy, Workington ICC GP lead, added:

 “This is a really exciting time for Cumbria. The changes we’ve seen focus on improving patient care and working closely with communities to provide services that work for them. By empowering communities to play a more active role in their own wellbeing we can ease pressure on health and care services and stop problems before they develop.”

Information is now available online for each ICC which explains the areas covered, the health challenges that area faces and the progress that has been made. Each ICC is based around a group of GP practices and their patients. By understanding the challenges that each area faces the community can work together with health and care organisations to improve the health and well-being of local people.

We work closely with Kendal ICC part of Better Care Together.  http://www.bettercaretogether.co.uk/

https://www.cumbriapartnership.nhs.uk/news/better-care-together-a-guide-for-our-staff#sthash.inMTsSdB.dpbs

ICCfactsheetfinalstaff

 

We will work with hotels and holiday accommodation owners to encourage them to add a ceiling hoist to a bedroom to enable people with disabilities to come and enjoy holidays in the Lake District.  You can read more at http://www.chuc.org.uk/index.php/accommodation-with-hoists/hotels-in-uk?limitstart=0

Sometimes you just need to change one thing to open up a world of possibility… Changing places, changing lives

http://www.changing-places.org/

We will approach motorway service stations to install a special toilet facility with a bench and hoist.  At present there is not a single toilet on the M6 in Cumbria with this provision.

Over a 1/4 million people need Changing Places toilets to enable them to get out and about and enjoy the day-to-day activities many of us take for granted. 

 The Changing Places Consortium launched its campaign in 2006 on behalf of the over 1/4 of a million people who cannot use standard accessible toilets. This includes people with profound and multiple learning disabilities, motor neurone disease, multiple sclerosis, cerebral palsy, as well as older people.

 

To use the toilet in safety and comfort, many people need to be able to access a Changing Places, which have more space and the right equipment, including a height adjustable changing bench and a hoist. You can download our campaigns leaflet for more information.

Not sure where your nearest Changing Places toilet is? Take a look at our map which allows you to search through all registered Changing Places toilets. 

Interested in installing? To learn more about Changing Places equipment and installation, you can contact our campaign sponsors Aveso on 01242 822 979 or visit their website by clicking on the logo below: