Cumbria Neuro meetings

University of Cumbria neuro study day – Carlisle

Watch this space – 21st March 2018

We are delighted to be supporting Helen Wilby, Senior Lecturer in Occupational Therapy at the Department of Health, Psychology and Social Studies helen.wilby@cumbria.ac.uk University of Cumbria to stage an information day about neurological conditions for students.

 

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Next meeting Cumbria Neurological Alliance Thursday 9th November

You are invited to the next meeting of the Alliance on Thursday 9th November 2017 10.30 am – 1 pm

Chance for Life Ltd 5 Hobson Court Gillan Way Penrith Business Park Cumbria CA11 9GQ

(Telephone: 01768 891709 in case of emergency or to book disabled parking)

 

AGENDA

  1. Welcome and introductions.
  2. Apologies
  3. Presentation by Tracey Thompson MND Association
  4. Update on NA business
  • Barrow Drop in Hub
  • Invoices for NA membership
  • Website and Twitter update – discussion re Facebook

5.  Update on review of Specialist Rehab Steering Group Lancashire and South Cumbria

6.  Feedback on ICC groups in Cumbria

7.  Programme for 2018 and diary dates

8   Any other business

 

Barrow neuro drop in sessions update

Barrow planning meeting

Members of the Cumbria Neurological Alliance are developing a neuro drop-in centre for people living with a neurological condition, their families and carers. It will be based in the Hindpool Centre, Barrow in Furness.

Charities and specialist neuro therapists working across South Cumbria came together this month to plan the programme which starts on 2nd November. The first groups will be hosted by Parkinson’s UK, Headway South Cumbria and the MND Association.

Dr David Footitt Consultant Neurologist said “I was delighted to hear that Cumbria Neurological Alliance has been able to secure support to run regular drop-in sessions at the Hindpool Community Centre. Whilst patients and carers affected by some of the commoner neurological conditions benefit from local support groups, too many people feel isolated by their condition and unable to link with others facing similar challenges. There are many common experiences shared between people with Neurological conditions. This initiative provides people with the opportunity to share, support and learn from one another whilst enjoying social interaction and a range of activities. This concentration on a core of well-being, supporting independence and maintaining social contacts is key to improving outcomes for my patients. I trust that we in the NHS will be able to support it to succeed and flourish.”

Dr David Footitt Consultant Neurologist Cumbria

The initiative has been supported by Dr Farhan Amin, GP and member of the Morecambe Bay CCG and Les Graham public health locality manager with Cumbria County Council.

Check out the programme https://cumbrianeurologicalalliance.wordpress.com/new-neuro-drop-in-centre-barrow/barrow-neuro-dropin-centre-programme/

Enquiries to Glenys Marriott Chair Cumbria Neurological Alliance at cumbrianeurologicalalliance@gmail.com Twitter @cumbrianeuro

Colin from the ABI team with Christine and David Wilson from Headway South Cumbria

 

David Schofield

 

The team from BIRT Barrow

More photos to come!

NEW Neuro Drop in Centre Barrow – next meeting

Watch the new page – we are planning a new weekly drop in centre at Hindpool Community Centre Barrow in Furness

Thanks to Local GP Dr Farhan Amin and Lesley Graham Public Health Locality Manager with Cumbria County Council we are being supported to start a new regular drop in session.

Our partners include Headway South Cumbria, Parkinson’s UK, The MS Society, Cumbria Partnership Trust’s ABI team, Epilepsy UK and Louise Chance at A Chance for Life.  We hope to include more neurological charities as we develop, but anyone living with a neurological condition will be welcome

 

Initial planning meeting with Shirley Mickalak, Lesley Graham, Glenys Marriott, Christine Wilson, Jan Waddington, Chris Wilson and Vivienne Rogerson

If you are interested in helping or just want to know more, join us at 10.30 am Thursday 12th October at

24 Nelson Street Barrow in Furness LA14 1NF

Please contact me if you would like to be involved:

 

Allerdale Branch of the MS Society Conference 14th May 2017

I was delighted to be asked to chair this education conference run by the Allerdale Branch of the MS Society.  There was an excellent turnout of over 70 members and the venue was the delightful Hundith Hill Hotel. http://hundith.com/

The programme included an excellent talk about the Brain Bank by Dr George Gveric from Imperial College.

You can read more at https://www.mssociety.org.uk/ms-research/get-involved-research/ms-tissue-bank

His presentation was followed by Dr David Footitt Consultant Neurologist from the Cumbria Partnership NHS Foundation Trust.  David was well known to the patients in the room and has been at the forefront of developing services for MS in Cumbria.

 

 

 

 

 

David described the choice of drugs currently available for people with MS and there were lots of questions afterwards.

Yvonne Booth from 10 in 10 an amazing fundraiser showed an inpirational video about her fundraising and her husband Duncan.

http://www.10in10.org.uk/

Do think about registering with 10 in 10 to raise funds for MS

Julia Walker spoke next about her work with Lake District Mobility.  Her project offers amazing access in the National Park to people with disabilities, and we are going to support her and work jointly on developing the range of Changing Places available.

http://www.changing-places.org/

https://www.facebook.com/lakedistrictmobility/

 Julia Walker

We finished the day with another inspiring talk about the Calvert Trust Kielder by Karen Diamond.

http://www.calvert-trust.org.uk/kielder/kielder

 

Contact details for Cumbria MS groups

We had a break for afternoon tea which was most delicious and time for lots of networking.

Many thanks to Hilary Windsor and all the team for inviting me, and we look forward to seeing you at our Cumbria Alliance meetings.

 

Theresa Westhead Huntington’s Disease

We were delighted to have Theresa come to speak to the Cumbria NA last week.  We had a large turnout of members at A Chance for Life in Penrith, and a lively discussion with Theresa afterwards.

Huntington’s disease, which is often called HD, is an hereditary disorder of the central nervous system. It used to be known as Huntington’s Chorea or HC. Huntington’s disease usually develops in adulthood and can cause a very wide range of symptoms. The disease affects both men and women.

She is keen to make contact with people interested in the disease and can be contacted at  01942 864645 theresa.westhead@hda.org.uk  She covers Cumbria, Lancashire, Bolton & Wigan

You can see more at https://www.hda.org.uk/hd/what-is-hd

Join us tomorrow – Thursday 11th May Penrith

10.30 am A Chance for Life Penrith 5 Hobson Court Gillan Way Penrith Business Park Cumbria CA11 9GQ
Remember that parking is difficult – so try across the main dual carriageway at the North Lakes Hotel Ullswater Rd, Penrith CA11 8QT
We have a really full agenda tomorrow starting with an informal talk from Theresa Westhead  about Huntingdon’s Disease.  Plenty of opportunity to ask questions.
 
This is followed by Faye Spedding, Neuro rehab case manager North of England Specialised Commissioning Team NHS England
There will also be key colleagues from Headway UK present to meet with local representatives at the end of the meeting.
Do remember to register for all our updates on our website at
 Please pass the invite to others you feel will be interested.

Notice of May meeting – AGM

Our May meeting will include our AGM and we hope as many members as possible will be able to attend. We run entirely on the good will of people with an interest in neurological conditions and meet 8-10 times a year, mostly open meetings with speakers.

The AGM meeting will include 

  • Confirmation of minutes of the AGM 2016
  • Chair’s annual report
  • Accounts 2016-2017
  • Formation of committee for 2017-18

If you are interested in joining the committee please either email cumbrianeurologicalalliance@gmail.com or complete the attached form