Cumbria University

Cumbria NA and Cumbria University – Neuro Study Day

Monday 13th May saw lead members of the Cumbria Neuro Alliance at Cumbria University offering a full day programme for students covering a variety of neurological conditions.

The participants were welcomed by Professor Brian Webster-Henderson Pro Vice Chancellor Health and Susie Wilson the OT programme lead chaired the day.

Susie Wilson

After Glenys Marriott’s talk ‘From A and E to recovery, the Neuro Trauma pathway’, Sara Fisher, Head of Clinical Services at A Chance for Life presented ‘The Value of the MDT approach for the care. treatment and support of people affected by neurological conditions.’

Sara Fisher

Over lunch there was time for discussion with leads, and plenty of handouts were available on all the conditions.

Angie Stewart and Yvonne Trace, Regional External Relations Officers, MS Society, presented ‘Understanding MS.’

Angie Stewart Yvone Trace and Susie Wilson

All about MS

This was followed by John Kane a volunteer from Parkinson’s UK who gave a presentation about living with Parkinson’s and the amazing work he does in the community to share his experiences.

John Kane

Theresa Westhead Specialist Huntington’s Disease adviser led the first session after lunch.

Theresa Westhead

Sue Muller Regional Care Development Adviser Lancashire and Cumbria MND Association together with Joni Mitchell and MDT members spoke about Living with MND.

Joni Mitchell MND Community Outreach Practitioner N and W Cumbria

We were pleased to welcome Paul from Welbeing who brought lots of handouts about their services in Cumbria https://www.welbeing.org.uk/

The day finished with a very quick update about Rare Neurological Conditions and a final photo of the team.

 

This was a thoroughly enjoyable day and I hope it encouraged students to stay in Cumbria when they graduate and to work in neuro services.  Thanks Susie and Angie for coordinating the programme and we look forward to next year!


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Thank you as 2017 draws to an end

We are already planning a weighty programme for 2018 but as 2017 draws to a close I want to thank our amazing committee and members who have turned out not just across Cumbria, but across the north of England, Greater Manchester and Cheshire to attend our meetings.  Support and attendance from Regional officers from the main neuro charities has been crucial to our work and I am delighted that they feel it is worth their long journeys to attend our meetings.

Those members who attend with long-term neurological conditions make all our endeavours worth while, and it is for them and the hundreds of others in Cumbria that we work to enhance services.  They keep us grounded and highlight what really matters to them.

We aim also to support our clinical colleagues, who care deeply about the work they do, and bring their expertise to our meetings so we can solve problems together.  We have been pleased to support Dr Jitka Vanderpol with her groundbreaking work on headaches and the addition to our committee this summer of Consultant Neurologist David Footitt has been an added bonus.

Dr David Footitt Consultant Neurologist Cumbria

We have spent 6 long years gathering information, working in partnership and making neurological services our priority.  We now feel on the cusp of something very exciting and believe that the needs of people living with a neuro condition might finally be prioritised and addressed.  Stephen Eames CEO NHS in North Cumbria and CEO Jackie Daniel UHMBT and Andrew Bennett Morecambe Bay CCG and in South Cumbria have received our response on how specialist neurological rehab. should be structured and we are keen to work closely with them to co-produce new strategies http://www.bettercaretogether.co.uk/

Co-production, co-operation and critical friendship are our aims.

The TLAP National Co-production Advisory Group says the following about co-production:

‘Co-production is not just a word, it is not just a concept, it is a meeting of minds coming together to find shared solutions. In practice, co-production involves people who use services being consulted, included and working together from the start to the end of any project that affects them. When co-production works best, people who use services and carers are valued by organisations as equal partners, can share power and have influence over decisions made’.

(See also https://www.england.nhs.uk/blog/david-mcnally/ )

As always, we want to thank Louise Chance at A Chance for Life for her unstinting contribution to both the Alliance and Headway groups. http://www.achanceforlife.co.uk/

We have regular and valuable advice and correspondence from Jozi Brown at Cumbria CVS and strongly recommend 3rd sector groups become members.  https://cumbriacvs.org.uk/

Our latest venture – Cafe Neuro in Barrow is underway and like all new ventures we are learning as we go, but I do hope that anyone living with a neurological condition will feel able to come and join in. We have appreciated the help we have received from Dr Farhan Amin, Furness GP and Lesley Graham Public Health Manager to get this started.  You can find our programme at https://cumbrianeurologicalalliance.wordpress.com/new-neuro-drop-in-centre-barrow/

(Above) Barrow planning meeting for Cafe Neuro with representatives from Headway, MNDA and MND Care Centre at Lancashire Hospitals Trust, MS Society, Stroke UK, Cumbria University, CPFT Parkinson’s Disease, A Chance for Life, Furness Carers and UHMBT.

The Cumbria Neurological Alliance is pleased to be a branch of the National Neurological Alliance which is the only collective voice for 80 organisations working together to make life better for millions of people in England with a neurological condition. Together we work with our member organisations to campaign nationally and locally to ensure better services and outcomes for all those with a neurological condition. http://neural.org.uk/

 

 

If you would like to join us just drop me a line at  cumbrianeurologicalalliance@gmail.com  

Our diary dates for 2018 are on this website and we look forward to making great progress in 2018.

https://cumbrianeurologicalalliance.wordpress.com/programme/programme-2018/

With best wishes for a Peaceful Christmas

Glenys Marriott

Chair Cumbria Neurological  Alliance

Image result for peaceful christmas

Would you like to learn more about Digital Health?

The University of Cumbria is running two modules in Digital Health beginning September 2017.

The first is DIGITAL HEALTH: USE OF TECHNOLOGY IN HEALTH AND SOCIAL CARE, this provides an introduction to using technology in health and social care in a variety of settings.

 

The second is DIGITAL HEALTH: WORK-BASED PROJECT in which you will be supported and mentored to implement a work based project.

For more information on these courses, please click here, or if you are interested and would like to discuss the course further, then please get in touch with me. Please also forward this email to others who may be interested.

elaine.bidmead@cumbria.ac.uk