29th April 2016 – NEW Neurology Focus Packs

Public Health England’s and NHS England’s RightCare team has now released its new ‘neurology focus packs’ tailored to each individual clinical commissioning group (CCG). The new packs provide a range of neurology data tailored to each local CCG, including breakdowns of spending on elective and non-elective admissions, some condition-specific information on admissions rates, and an ‘opportunity table’ which identifies the best opportunities for improving value and outcomes locally, using comparable CCGs.


All the focus packs are available via the Commissioning for Value website at the following link:

To download the packs, follow the links to the different commissioning regions.


New Rehabilitation Commissioning Guidance

The new Rehabilitation Commissioning Guidance has been published: – see page 13 for the model being considered in Lancashire and South Cumbria.

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Patient experience survey – launch June 2016

Arlene Wilkie CEO the Neurological Alliance has written “We would like to remind members that this summer we will be launching the second iteration of our neurological patient experience survey. We intend to launch the survey in June and hope that members will assist in disseminating the survey as widely as possible. Last year’s survey received almost 7,000 responses thanks to the support of our members, and we hope to surpass that this year. We will be in touch over the coming weeks and months with more information. The questions and responses from the 2014 survey are available here.”

This was a vitally important survey giving a wealth of information recounting the pressures experienced by families living with a neurological condition.

Watch this space for the new survey

NICE guideline on general neurology

Earlier this month NICE consulted on the scoping document for its general neurology guideline, following consultation workshops in December. The Cumbria Neurological Alliance’s view is that this should be a symptoms-based guideline, not excluding any particular neurological conditions. We now await the publication of the consultation response before engaging as stakeholders with the development of the guideline itself. Interested members can register as stakeholders via the NICE website to receive updates and engagement opportunities throughout the guideline development.

NHS England community care project

NHS England is currently scoping models of commissioning community care services for long-term neurological conditions. The project is being carried out in partnership with Strategic Clinical Networks, led by the Thames Valley SCN. The aim of the programme is to:

  • Stimulate the delivery of person centred co-ordinated care for people with neurological conditions by encouraging the adoption of community based care model(s)
  • Develop an evidence base to demonstrate and help commissioners understand the value and benefits of good community neurology.
  • The objective for this year is to develop a commissioning toolkit to support local commissioning of new models of community-based care.
  • The Neurological Alliance is supporting the workstream around communicating and publicising the project. There is a project page available on the Alliance’s website with further information, including contact details for workstream leads, available via