National Initiatives

CCG/STP mini audit

The National Neurological Alliance received an FOI response from NHS England highlighting that just 37 of 195 CCGs have submitted NHS RightCare delivery plans that include a focus on neurological problems for their improvement projects.

They are now actively considering how to influence STPs to focus more on neurology, including potential funding and resources for future influencing work.

New Care Models Evaluation

A policy report No hospital is an island – learning from the acute care collaborations,
highlights initial learnings from the acute care collaboration established in as part of the new
care models programme. This includes the Neuro Network, centred on the Walton Centre.

Findings include:
• High satisfaction with the nursing advice line and Integrated Neuro Nurse Specialist project
• The Neuro Network’s Consultant Advice Line has reduced the need for outpatient referrals,
leading to significant cost savings
• The direct replicability of some of the models such as the Neuro Network may be limited
because of their unique nature

Neuroscience R&D Technologies Conference

The 3rd Annual Neuroscience R&D Technologies Conference is to be held on 28 and 29 September 2017.

Venue: Radisson Blu Edwardian Hotel, Heathrow, London. The conference aims to focus on sharing technological advancements and future challenges in pre-clinical neuroscience research where experts from the pharma industry and research institutes will discuss the latest technologies in neuroscience R&D.

More information:

Building for Equality Report

25th April 2017 Women and Equalities Select committee, chaired by Maria Miller MP, published its report into access for disabled people to the built environment.

View Building for Equality report

The committee’s key recommendations include:

  • Government should give strategic leadership to ensure disabled people can access the built environment
  • Government should make it easier for planning authorities to insist on access including not signing off local plans unless they address access to housing, public spaces and the wider built environment
  • There should be more ambition in implementing accessible housing standards to at least the equivalent of the life time homes standard
  • Increased provision of Changing Places toilets in public building should be a priority
  • There should be a moratorium on shared space schemes until national guidelines are developed that guarantee access and safety for disabled people.

This fits with the priority given this year by the Cumbria NA to raise the issue of the lack of Changing Places across the County.


New Rights for Wheelchair Users to access Taxi Services

From 6 April 2017 drivers of Wheelchair Accessible Vehicles (WAVs) will be liable for a fine of up to £1,000 if they refuse to carry the passenger in their chair, fail (unless they have an official exemption) to provide assistance, such as deploying the ramp and helping to push them into the vehicle, or charge extra for carrying a passenger who uses a wheelchair.

This is a new blog about the changes by Will Bee, Chair, Local Transport Group Disabled Person’s Transport Advisory Committee. Read blog

Major reform of social care funding and provision needed

The Communities and Local Government Committee report says that the Government needs to urgently review how social care is funded in the long term and address serious threats to social care provision.

 Key facts

 ·         Fewer than one in twelve Directors of Adult Social Care are fully confident that their local authority will be able to meet its statutory duties in 2017–18

·         28% of care services are inadequate or require improvement

·         Some councils pay £2.24 an hour for residential care

·         96% of people paying for their own care pay on average 43% more than state funded residents in the same home for the same room and the same level of care

·         The turnover rate for nurses working in social care is 35.9%

·         47.8% of care workers leave within a year of starting

·         The median hourly pay for a care worker is £7.40

·         160,000 to 220,000 care workers in England are paid below the national minimum wage

·         49% of home care workers are on zero hour contracts, compared with 2.9% of the workforce nationally

·         27% of care workers received no dementia training and 24% of those who administer medication were not trained to do so

·         Between 2010–11 and 2013–14, the number of unpaid carers increased by 16.5%, while the general population grew by 6.2%

·         In Leicester, although 30,000 people identified themselves as a carer in the 2011 Census, only 2,200 carers were in contact with the council

·         One in five unpaid carers providing 50 hours or more of care each week receives no practical support from the local authority

 Read more at:

New Parkinson’s campaign backed by NHS chiefs

With Parkinson’s Awareness Week taking place between 10-16 April, the Parkinson’s UK charity have introduced a new campaign “We Won’t Wait”, which encourages the public to donate towards research, aiming to find new treatments for the disorder.

Doctors at Morecambe Bay Clinical Commissioning Group (CCG) are supporting the campaign to help find new treatments for the condition, as well as educating the public on what treatments are currently available.

The last significant drug discovery for Parkinson’s disease was over 50 years ago and campaigners are keen that more is done, so that people who suffer from the disorder can benefit from improved treatments. Parkinson’s affects part of the brain and over time the condition is deteriorative. The most common symptoms include tremors (involuntary shaking of parts of the body), stiff muscles and slow movement.

Parkinson’s disease is a serious condition; there are an estimated 127,000 people in the UK, who suffer from the disorder.

The treatments currently available to help reduce the symptoms include:

  • Physiotherapy and occupational therapy
  • Medication
  • Surgery

A number of people who suffer from the disease respond well to the treatment and their quality of life is enhanced; however, in a few cases, patients do not respond well to treatment and for this reason, campaigners are keen that research into new treatments continues.

Dr Alex Gaw, from Morecambe Bay CCG, said: “There is still a lot that needs to be done for people who suffer from Parkinson’s disease. This is why I am calling upon local residents to support the Parkinson’s UK charity, so more money can be spent on research into new life-changing drugs.

“If you feel you are experiencing symptoms of this disorder, I would suggest seeing your GP for a consultation. They may refer you to a specialist for further tests if needed.”

For more information about the charity, Parkinson’s UK, which can help people who are living with the disease and provide them with support groups in their local area, call 0808 800 0303 or email

NHS Choices is also available for anyone who needs any help or advice regarding the disorder.


Royal Pharmaceutical Society (RPS)

The RPS promotes the expertise and clinical knowledge of pharmacists to support people with long term conditions and help them achieve the desired outcomes from their medicines, thereby making more efficient use of National Health Service (NHS) resources.

A new report takes a principle based approach to the management of long term conditions. Focussing on the need to enhance the role of pharmacists as part of a multidisciplinary approach, the report takes into account the main objectives of NHS England’s Five Year Forward View.

The RPS proposes that optimal use of pharmacists can support people with long term conditions to:

  •  Improve health by maximising pharmacists’ role in health and wellbeing 
  • Transform care by utilising pharmacists’ skills, expertise and knowledge in medicines and their holistic approach to patient care 
  • Help to control costs by reducing medicines waste and unplanned admissions to hospital by better use of medicines
  • See the report at

Get Out Get Active

Get Out Get Active

Get Out Get Active (GOGA) is an exciting new programme that supports disabled and non-disabled people to enjoy being active together.


It focuses on getting some of the UK’s least active people moving more through fun and inclusive activities in their local communities.

Delivered by the English Federation of Disability Sport (EFDS) and their partners and funded by Spirit of 2012, it runs for over three years (2016-2019) within 18 localities (areas) across the UK, Northern Ireland, Wales and Scotland. Disability Rights UK is a National Partner.

As part of GOGA, Disability Rights UK is running a Peer Support project working with Disabled People’s Organisations and local sport and fitness organisations and providers to get people moving and enjoying fun activity- not just sport. Peer Support is about someone using their lived experience of overcoming barriers to support someone else who might be experiencing similar barriers. It takes many forms but is usually one to one and informal. The benefits of using peer support to be more active can be life changing. From boosting confidence to becoming healthier and improving mental wellbeing.

What is peer support and mentoring?

What helps to make activities more appealing and accessible?

Read more about our partners

Find out more

Questions? Or to register your interest contact Kate Pieroudis (Peer Support Lead) at Disability Rights UK on 0207 250 8111 or