Important update from the Neurological Alliance – we shall be joining in and circulating the survey!
“We’re excited to announce that the Neurological Alliance’s third biennial patient experience survey will be launched on 17 October, and will be open until 17 January. Our patient experience survey is unique in gathering the views of people with neurological conditions across England about their experience of health and care services. As with our previous surveys, we will use the results to advocate for improved care for people with neurological conditions. Below are some details about the survey, what we use if for, and why it’s worth your effort to promote it.
Benefits of actively promoting the survey to your community
- Deliver a rich source of data on neurology patients‘ experience
- Influence the future quality of neuro health services and social care
- Receive a report of your individual condition’s aggregated results
What do I need to do?
Please consider undertaking the following steps to help promote the survey:
- Reserve space for information about the survey in your outward communications with your community taking place October – January.
- Identify a good location(s) to place a poster about the survey.
- Use the forthcoming comms toolkit to support you in your promotion activities.
What are the benefits for my condition community of promoting the survey?
By promoting the survey you will aid the collection of data used to advocate on behalf of all people with neurological conditions. We will also give you the aggregated results specific to your condition community. So the more you promote the survey, the better the understanding of your own condition community’s experiences you will gain. The results from previous patients experience survey have been used in many ways including:
- Making the case for continued national leadership for neurology in order to drive much needed improvement in services, which resulted in the National Neuro Advisory Group being set up.
- Presenting to the National Neuro Advisory Group, which result in them deciding to prioritise care planning and communication with patients. This work is now being fed into work on the long term plan for the NHS.
- Highlighting the particularly poor experience of people with co-morbid mental health, cognitive or emotional needs. This informed our 2017 publication Parity of Esteem for People with Neurological Conditions and lead to the Neurological Alliance developing a programme of work on mental health and neurology
Is the survey the same as before?
This will be the Neurological Alliance’s third biennial Neurology Patient Experience Survey. We previously ran the survey online only, gaining over 7,000 responses in 2016. For 2018/19 we’re running the online survey as usual. But we are additionally using a new clinic-based methodology, to enable us to achieve a more representative sample of people with neurological conditions, and increase our response rate. This will take place early in 2019. The Neurological Alliance is working in partnership with Quality Health to deliver the 2018/19 survey. Quality Health has significant expertise in this field, being the largest provider of patient and staff surveys to the NHS in the UK.”
Senior Policy and Campaigns Adviser |The Neurological Alliance