Current NICE consultations include:
• Cerebral palsy in adults
• Dementia – assessment, management and support for
people living with dementia and their carers
• Independent living: supporting independence and
preventing isolation in adults of working age with social
• Intermediate care including reablement
• Safeguarding adults in care homes
• Suspected neurological conditions
• People’s experience in adult social care services:
improving the experience of care for people using adult
social care services
• Stroke and transient ischaemic attack in over 16s:
diagnosis and initial management
• Adults with complex needs (including learning disabilities)
and mental health needs: social work interventions
NICE are also developing or updating
guidance (or quality standards) on
the following topics:
• Cerebral palsy in children and
• Low back pain and sciatica in over
• Persistent pain
• Parkinson’s disease
• Brain tumours (primary) and brain
metastases in adults
• Nerve transfer for restoration of
upper limb function in tetraplegia
To register as a stakeholder for any of these consultations or guidance visit:
This is advance notice that the NICE Trauma quality standard consultation will run from 10 November 2017 to 8 December 2017. They would very much welcome your comments on the draft quality standard.
Registered stakeholders will be notified on the day the consultation opens with instructions on how to submit comments.
For further information on the quality standard or the quality standards programme in general please see the links below.
Quality standards programme
Register as a stakeholder
We encourage you to register as a stakeholder. Comments received from non-registered organisations and individuals are not summarised in the summary report presented to the committee but are included as an appendix. These comments are not made available on the NICE website. However, if they result in changes to the quality standard this is recorded in the committee meeting minutes.
Mentioned previously but still ongoing – NICE are producing guidance on using cladribine tablets for treating relapsing-remitting multiple sclerosis in the NHS in England. They are inviting organisations to take part in the appraisal to produce the guidance; to submit evidence, nominate experts, comment on consultation documents produced during the appraisal, and appeal against the final recommendation. More details here: https://www.nice.org.uk/guidance/indevelopment/gid-tag392
NICE are also updating or developing guidelines on the following topics:
REMINDER from NICE
You can now review and comment on this draft guideline.
The consultation closes on 19 September 2017 at 5pm
How to comment
1. Register your organisation
Your organisation needs to be registered as a stakeholder before we can accept comments.
Not eligible? Contact the stakeholder organisation that most closely represents your interests and pass your comments to them.
2. Read the consultation documents
Documents to comment on:
Other information about the consultation
3. Add your comments
- You must use this comments form.
- You must declare any links with, or funding from, the tobacco industry
If you share similar views with another organisation, send a joint response.
Make sure you consider:
- The areas that will have the biggest impact on practice and be challenging to implement
- How to help users overcome challenges
Developing NICE guidelines: how to get involved suggests some other areas to comment on.
4. Email the form to us
Deadline: 19 September 2017, 5pm
A number of members of the SHCA, including the Neurological Alliance, co-signed a letter to urge the three main political party leaders to reverse the recent NICE access to treatment reforms and guarantee that any future reforms will be considered by Parliament before being implemented. The letter was finally issued as an open letter to all the party leaders and published in The Telegraph.
Sarah Vibert, chief executive, Neurological Alliance, said: “Politicians from all sides should pledge to rethink these damaging proposals. It is completely unacceptable that patients with neurological conditions risk being denied access to treatment solely on the basis of cost.”
The Telegraph article can be found here:
Message from NICE:
“The National Institute for Health and Care Excellence (NICE) is doing an important research project to understand the perceptions and experiences of our users. We would like to know what you think of us as an organisation, including how we operate and how you keep updated with our work.
The results will be presented to our Board and by sharing your views you will play a part in shaping our products and services. Your feedback will be valued and appreciated.
To take part, we ask that you complete this short survey, which should take approximately 10 minutes, by Friday 5th May 2017. All responses will be completely confidential and remain anonymous in any reporting.
If you have any questions about the survey, please contact firstname.lastname@example.org
Thank you in advance for your contribution.
Audience Insight Team National Institute for Health and Care Excellence
Level 1A | City Tower | Piccadilly Plaza | Manchester M1 4BT | United Kingdom
Email: AudienceInsight@nice.org.uk Web: NICE
Any personal data sent to NICE will be used for the purpose of conducting surveys and related user research to improve NICE services. The data may be passed to third parties in accordance with the Data Protection Act 1998 in order to carry out associated work. The information you provide will be treated in confidence and will only be disclosed as required by law including, but not exclusively, the Freedom of Information Act 2000.”
Topic engagement on the NICE Parkinson’s disease quality standard is now open
The topic engagement exercise on the Parkinson’s disease quality standard opened 5 days ago. The topic overview published describes core elements of the quality standard and NICE are inviting you to share what you consider to be the 5 key areas for quality improvement in this area.
Please note this is not a consultation on the draft quality standard; there will be a consultation on the draft quality standard on 2 August 2017.
To submit your suggested 5 key areas for quality improvement please visit the topic webpage:
NICE encourages you to register as a stakeholder. Comments received from non-registered organisations and individuals are not summarised in the briefing paper presented to the committee but are included as an appendix. These comments are not made available on the NICE website. However, if they result in changes to the quality standard this is recorded in the committee meeting minutes.
Responses must be submitted to QStopicengagement@nice.org.uk by 5pm on 20 April 2017.