The Neurological Alliance is disappointed in this new publication from NICE
The NICE guideline on suspected neurological conditions: recognition and referral has been published. The Neurological Alliance is disappointed with the result and believe this constitutes a missed opportunity to improve care. The Alliance is arranging a meeting with NICE to take this up with them.
NICE wrote to notify it is developing/updating NICE guidelines on the following topics:
- Subarachnoid Haemorrhage due to Ruptured Aneurysms
- Sleep disordered breathing
- Behaviour change: technology-based interventions
- Crohn’s Disease (update)
- Atrial Fibrillation (update)
The following NICE guidelines are also being checked to see whether they need updating:
- NG3 Diabetes in pregnancy
- CG137 Epilepsies: diagnosis and management
- PH13 Physical activity in the workplace
- PH17 Physical activity for children and young people
- PH46 BMI: preventing ill health and premature death in black, Asian and other minority ethnic groups
- PH54 Physical activity: exercise referral schemes
We circulated this update to members who might be interested in registering to comment.
Current NICE consultations include:
• Cerebral palsy in adults
• Dementia – assessment, management and support for
people living with dementia and their carers
• Independent living: supporting independence and
preventing isolation in adults of working age with social
• Intermediate care including reablement
• Safeguarding adults in care homes
• Suspected neurological conditions
• People’s experience in adult social care services:
improving the experience of care for people using adult
social care services
• Stroke and transient ischaemic attack in over 16s:
diagnosis and initial management
• Adults with complex needs (including learning disabilities)
and mental health needs: social work interventions
NICE are also developing or updating
guidance (or quality standards) on
the following topics:
• Cerebral palsy in children and
• Low back pain and sciatica in over
• Persistent pain
• Parkinson’s disease
• Brain tumours (primary) and brain
metastases in adults
• Nerve transfer for restoration of
upper limb function in tetraplegia
To register as a stakeholder for any of these consultations or guidance visit:
This is advance notice that the NICE Trauma quality standard consultation will run from 10 November 2017 to 8 December 2017. They would very much welcome your comments on the draft quality standard.
Registered stakeholders will be notified on the day the consultation opens with instructions on how to submit comments.
For further information on the quality standard or the quality standards programme in general please see the links below.
Quality standards programme
Register as a stakeholder
We encourage you to register as a stakeholder. Comments received from non-registered organisations and individuals are not summarised in the summary report presented to the committee but are included as an appendix. These comments are not made available on the NICE website. However, if they result in changes to the quality standard this is recorded in the committee meeting minutes.
Mentioned previously but still ongoing – NICE are producing guidance on using cladribine tablets for treating relapsing-remitting multiple sclerosis in the NHS in England. They are inviting organisations to take part in the appraisal to produce the guidance; to submit evidence, nominate experts, comment on consultation documents produced during the appraisal, and appeal against the final recommendation. More details here: https://www.nice.org.uk/guidance/indevelopment/gid-tag392
NICE are also updating or developing guidelines on the following topics:
REMINDER from NICE
You can now review and comment on this draft guideline.
The consultation closes on 19 September 2017 at 5pm
How to comment
1. Register your organisation
Your organisation needs to be registered as a stakeholder before we can accept comments.
Not eligible? Contact the stakeholder organisation that most closely represents your interests and pass your comments to them.
2. Read the consultation documents
Documents to comment on:
Other information about the consultation
3. Add your comments
- You must use this comments form.
- You must declare any links with, or funding from, the tobacco industry
If you share similar views with another organisation, send a joint response.
Make sure you consider:
- The areas that will have the biggest impact on practice and be challenging to implement
- How to help users overcome challenges
Developing NICE guidelines: how to get involved suggests some other areas to comment on.
4. Email the form to us
Deadline: 19 September 2017, 5pm
A number of members of the SHCA, including the Neurological Alliance, co-signed a letter to urge the three main political party leaders to reverse the recent NICE access to treatment reforms and guarantee that any future reforms will be considered by Parliament before being implemented. The letter was finally issued as an open letter to all the party leaders and published in The Telegraph.
Sarah Vibert, chief executive, Neurological Alliance, said: “Politicians from all sides should pledge to rethink these damaging proposals. It is completely unacceptable that patients with neurological conditions risk being denied access to treatment solely on the basis of cost.”
The Telegraph article can be found here: