Yvonne Trace Regional External Relations Officer (Greater Manchester, Lancashire & South Cumbria) of the MS Society and one of our committee members is carrying out a survey about wheelchair services in South Cumbria.
If you or someone you know lives in South Cumbria and uses a wheelchair please read this
and complete this survey
Your details will be kept in confidence but we want to get as many views as possible.
Message from NICE:
“The National Institute for Health and Care Excellence (NICE) is doing an important research project to understand the perceptions and experiences of our users. We would like to know what you think of us as an organisation, including how we operate and how you keep updated with our work.
The results will be presented to our Board and by sharing your views you will play a part in shaping our products and services. Your feedback will be valued and appreciated.
To take part, we ask that you complete this short survey, which should take approximately 10 minutes, by Friday 5th May 2017. All responses will be completely confidential and remain anonymous in any reporting.
If you have any questions about the survey, please contact email@example.com
Thank you in advance for your contribution.
Audience Insight Team National Institute for Health and Care Excellence
Level 1A | City Tower | Piccadilly Plaza | Manchester M1 4BT | United Kingdom
Email: AudienceInsight@nice.org.uk Web: NICE
Any personal data sent to NICE will be used for the purpose of conducting surveys and related user research to improve NICE services. The data may be passed to third parties in accordance with the Data Protection Act 1998 in order to carry out associated work. The information you provide will be treated in confidence and will only be disclosed as required by law including, but not exclusively, the Freedom of Information Act 2000.”
The Prescription Charges Coalition has launched a survey to find out how paying for prescriptions affects the lives of people with long term conditions in England. Please share this survey with your members so they can share the impact that prescription charges have on them, and their ability to take their medication as prescribed:http://surveys.parkinsons.org.uk/s/YS3LK/ The survey will close on 30 April 2017.
If your organisation is interested in knowing more about the Prescription Charges Coalition, please feel free to get in touch: firstname.lastname@example.org
Mental health report
As neurological conditions relate to the brain and nervous system, there is an increased complexity in the interaction between physical needs and broader emotional, cognitive and mental health needs. We have been working on a report examining the different aspects of living with and accessing treatment for mental health conditions if you also have a neurological condition. The draft report is being finalised and will be published later this year.
However, case studies would be a very useful addition to the report – can you please let me know if you have a case study for possible inclusion? Stories covering the following – either a positive story outlining where neurology patients have received good support to meet their mental health needs or a negative story, high-lighting the consequences of difficulties in accessing support for mental health – would be helpful.
- Provision of good quality information and support which has enabled prevention and/or self-management
- Access to therapeutic interventions or treatments which take account of the underlying neurological condition
- Access to regular screening for emotional, cognitive and mental health needs
- Working with a neuropsychiatrist or receiving a neuropsychiatric assessment
The Association of British Neurologists (ABN) has also launched their new report looking at acute neurology services. A pdf of the report can be found on their web site:
Based on findings from Carers UK, State of Caring Survey 2016, ‘Missing out: The identification challenge’ research project explores the time it takes for people to recognise they have taken on a caring role, and whether they had missed out on support because they simply didn’t think of themselves as a carer.
The Independent Living Strategy Group (chaired by Baroness Jane Campbell) is seeking information about cases where an individual has been in dispute with their local authority concerning assessment and/or support provided under the Care Act, and where the local authority has climbed down following a threat of legal action. Please email any information to Jenny Morris, email@example.com.
If you have any queries about this please also email Jenny.