To do this, they are interviewing people about sharing information about their impairment or condition with their employer and colleagues. Scope would be interested to hear from people who haven’t discussed their impairment or condition with their employer as well as people who have. Find out more
I was delighted to be asked to chair this education conference run by the Allerdale Branch of the MS Society. There was an excellent turnout of over 70 members and the venue was the delightful Hundith Hill Hotel. http://hundith.com/
The programme included an excellent talk about the Brain Bank by Dr George Gveric from Imperial College.
You can read more at https://www.mssociety.org.uk/ms-research/get-involved-research/ms-tissue-bank
His presentation was followed by Dr David Footitt Consultant Neurologist from the Cumbria Partnership NHS Foundation Trust. David was well known to the patients in the room and has been at the forefront of developing services for MS in Cumbria.
David described the choice of drugs currently available for people with MS and there were lots of questions afterwards.
Yvonne Booth from 10 in 10 an amazing fundraiser showed an inpirational video about her fundraising and her husband Duncan.
Do think about registering with 10 in 10 to raise funds for MS
Julia Walker spoke next about her work with Lake District Mobility. Her project offers amazing access in the National Park to people with disabilities, and we are going to support her and work jointly on developing the range of Changing Places available.
We finished the day with another inspiring talk about the Calvert Trust Kielder by Karen Diamond.
Contact details for Cumbria MS groups
We had a break for afternoon tea which was most delicious and time for lots of networking.
Many thanks to Hilary Windsor and all the team for inviting me, and we look forward to seeing you at our Cumbria Alliance meetings.
Received via Cumbria CVS
Please find attached details of the current vacancy for a third sector representative to sit on Cumbria’s Public Health Alliance.
The representative will join Sheila Gregory (Carlisle Mencap and Chair of the Public Health Alliance) in representing the third sector in Cumbria, through the Cumbria Third Sector Network and its various specialist networks.
– Relevant Terms of Reference, person spec and role description
– Application form
If you are interested, please complete the application form and email to email@example.com by Friday 9 June 2017.
If more than one suitable application is received, the Cumbria Third Sector Network members (through specialist networks) will be asked to elect a representative.
We were delighted to have Theresa come to speak to the Cumbria NA last week. We had a large turnout of members at A Chance for Life in Penrith, and a lively discussion with Theresa afterwards.
Huntington’s disease, which is often called HD, is an hereditary disorder of the central nervous system. It used to be known as Huntington’s Chorea or HC. Huntington’s disease usually develops in adulthood and can cause a very wide range of symptoms. The disease affects both men and women.
She is keen to make contact with people interested in the disease and can be contacted at 01942 864645 firstname.lastname@example.org She covers Cumbria, Lancashire, Bolton & Wigan
You can see more at https://www.hda.org.uk/hd/what-is-hd
Many thanks to Jo Cole Chief Officer from Tees Valley, Durham and North Yorks Neurological Alliance for sharing this video with us, made by her members, and allowing us to use it here.
- Kate Burnyeat (Allerdale) – 07500098131 email@example.com
- Sam Finn (Copeland) – 07776484814 firstname.lastname@example.org
- Kerrie Griffiths (Barrow) – 07827282196 email@example.com
- Danny McAllister (Carlisle) – 07920087706 firstname.lastname@example.org
- Andrew Davis ( Eden) – 07825340382 email@example.com
- Jo Sedgwick – 07500108756 (south Lakes) Joanne.firstname.lastname@example.org
To find out more about Safeguarding Adults in Cumbria, go to: http://www.cumbria.gov.uk/healthandsocialcare/adultsocialcare/safe/
The Local Government Association (LGA) has published a report in conjunction with Volunteering Matters highlighting where public health is successfully working with the voluntary sector across the country. The increasing emphasis on prevention and integration has brought new opportunities for the sector, which has stepped up to meet the challenge. New investment has been particularly positive at a time when statutory agencies as a whole were often looking to reduce funding. Now, at a time of severely constrained resources for both local government and the NHS, it is even more important that we work together as equal partners to mobilise all our assets to tackle poor health and health inequalities.
Read more at:
Thursday 20 April 2017 at The Roundthorn Country Hotel, Beacon Edge, Penrith CA11 8SJ from 6.15pm – 9.00pm
Light refreshments will be served.
This will be an opportunity for all of our Cumbrian supporters to meet together at one venue, find out about our latest fundraising campaigns, share ideas and personal experiences and discover many things that you didn’t know are happening across the field of brain tumour research. The guest speaker at the event, our Director of Research Dr Kieran Breen, will provide insights into the latest research within our four Centres of Excellence. Our research teams represent the UK’s largest collaboration of laboratory-based experts, investigating adult and paediatric brain tumours as well as high and low grade brain tumours.
There will be opportunities for you to ask any fundraising and/or research questions.
If you and any family members, friends or other interested parties would like to join us, please RSVP by email or phone by the Monday 10 April, as places are on a strictly first come basis.
RSVP Sara Eltman email@example.com M: 07590 847355