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Community Transport inquiry Deadline 3 Nov 2017

The Transport Committee is launching a new inquiry into the licensing arrangements for community transport minibuses and the broader sustainability of the community transport sector. The deadline for written submissions is Friday 3 November 2017.

Lilian Greenwood MP, Chair of the Transport Committee, said:

“Many people rely on community transport services to access healthcare, education, employment and leisure. These include people with disabilities and people in isolated rural areas, which are poorly served by conventional, commercial services.

Our inquiry, in response to recent interpretations of the licensing rules, will take a balanced look at the community transport sector, including how to ensure a level playing field for competitively tendered contracts, where appropriate. Ultimately our concern is that socially valuable community transport services are protected and remain sustainable in the long term.”

The deadline for written submissions is Friday 3 November 2017.

Find out more

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Dates for the new Barrow Neuro Dropin Centre. 

Anyone living with a neurological condition, carers or family are welcome to attend.

Meetings take place starting at 11 am until 2 pm.  Tea, coffee and biscuits will be available.

We shall be adding regular updates as the programme develops. We hope in the near future that the groups will be held on every Thursday in the month but so far we are pleased to say that all but the second Thursday in the month are confirmed

November 2017 
Thursday 2nd November Run by Parkinson’s UK

Programme appearing soon

Thursday 9th November currently vacant
Thursday 16th November Run by Headway South Cumbria

Social drop in plus:

A session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 23rd November Run by MNDA 

Programme appearing soon

Thursday 30th November

Start 11 am

ALL welcome – open meeting to discuss ideas for the future programme and to share progress so far
Image result for neurological conditions Image result for neurological conditions
 December 2017
Thursday 7th December Run by Parkinson’s UK

Programme appearing soon

Thursday 14th December Currently Vacant
Thursday 21st December Run by Headway South Cumbria

Social drop in plus mince pies and a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 28th December NO MEETING
 2018
 January 2018
Thursday 4th January 2018 Run by Parkinson’s UK

Programme appearing soon

Thursday 11th January 2018 Currently vacant
Thursday 18th January 2018 Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 25th January 2018 Run by MNDA 

Programme appearing soon

 Image result for neurological conditions  Image result for neurological conditions
Dates February 2018
Thursday 1st February Run by Parkinson’s UK

Programme appearing soon

Thursday 8th February Currently vacant
February 15th February Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

February 22nd February Run by MNDA 

Programme appearing soon

March 2018
Thursday 1st March Run by Parkinson’s UK

Programme appearing soon

Thursday 8th March Currently vacant
Thursday 15th March Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 22nd March Run by MNDA 

Programme appearing soon

Thursday 29th March

Start 11 am

ALL invited.  This will be a review meeting to consider how the first months have developed

Any queries please contact cumbrianeurologicalalliance@gmail.com

Up-date from the Encephalitis Society

The Encephalitis Society has a number of awards open to members. These include:

 

They are also looking for keynote speakers for the Encephalitis Conference being held in London on 4 December 2017. Information about how to submit an abstract can be found here: www.encephalitis.info/conference

 

UN Committee on the Rights of Persons with Disabilities

The UK Government’s claim to be a ‘world leader in disability issues’ crushed by the UN Committee on the Rights of Persons with Disabilities: The Committee has released damning Concluding Observations on the UK, following its first Review of the government’s compliance with the Convention. Kamran Mallick, Disability Rights UK CEO, said: “The committee’s final observations and comments represent a grim reality check for the UK government and its record on ensuring the human rights of disabled people. Read the full statement

Update – advice after head injury – driving

The Northern Trauma Network Clinical Advisory Group have advised us of some recent changes to driving advice after head injury.  Northumbria Head Injury Service are ahead of the game with this and are developing an information leaflet detailing the current advice required which they will share once finished.

However, in the interim it is important to make you aware that patients should be advised if they have had a serious brain injury that they inform the DVLA and do not drive for at least 6 months.  A serious brain injury may include one or more of the following features:

  • Being unconscious for several hours following the injury
  • Being confused and disorientated for over 24 hours (post traumatic amnesia) after the injury.
  • Having a seizure (fit) caused by the injury
  • Developing epilepsy following the injury
  • Having a haematoma, brain haemorrhage (bleeding into the brain) or a contusion (bruising on the brain)
  • Having a craniotomy (an operation to remove a flap of skull to access the brain)
  • Having a visual field defect (loss of peripheral vision)

Thanks to Naomi Tinnion
Network Administration and Support Officer
Clinical Networks and Senate
Cumbria, Northumberland, Tyne and Wear Area Team
NHS England

Allerdale Branch of the MS Society Conference 14th May 2017

I was delighted to be asked to chair this education conference run by the Allerdale Branch of the MS Society.  There was an excellent turnout of over 70 members and the venue was the delightful Hundith Hill Hotel. http://hundith.com/

The programme included an excellent talk about the Brain Bank by Dr George Gveric from Imperial College.

You can read more at https://www.mssociety.org.uk/ms-research/get-involved-research/ms-tissue-bank

His presentation was followed by Dr David Footitt Consultant Neurologist from the Cumbria Partnership NHS Foundation Trust.  David was well known to the patients in the room and has been at the forefront of developing services for MS in Cumbria.

 

 

 

 

 

David described the choice of drugs currently available for people with MS and there were lots of questions afterwards.

Yvonne Booth from 10 in 10 an amazing fundraiser showed an inpirational video about her fundraising and her husband Duncan.

http://www.10in10.org.uk/

Do think about registering with 10 in 10 to raise funds for MS

Julia Walker spoke next about her work with Lake District Mobility.  Her project offers amazing access in the National Park to people with disabilities, and we are going to support her and work jointly on developing the range of Changing Places available.

http://www.changing-places.org/

https://www.facebook.com/lakedistrictmobility/

 Julia Walker

We finished the day with another inspiring talk about the Calvert Trust Kielder by Karen Diamond.

http://www.calvert-trust.org.uk/kielder/kielder

 

Contact details for Cumbria MS groups

We had a break for afternoon tea which was most delicious and time for lots of networking.

Many thanks to Hilary Windsor and all the team for inviting me, and we look forward to seeing you at our Cumbria Alliance meetings.