University of Cumbria neuro study day – Carlisle

Watch this space – 21st March 2018

We are delighted to be supporting Helen Wilby, Senior Lecturer in Occupational Therapy at the Department of Health, Psychology and Social Studies University of Cumbria to stage an information day about neurological conditions for students.



National Neuro Advisory Group & Clinical Reference Group

14th November 2017

The NA patient group met with Professor Adrian Williams, National Neuro Advisory Group Chair and Clinical Reference Group chair and  Jackie Kemp, lead commissioner for adult neurosciences. There was a tight agenda including:


  • NICE guideline on suspected neurological conditions in primary care
  • Clinical leaders away day feedback and key messages
  • Programme management
  • Condition specific workstreams update
  • Data subgroup
  • Rehabilitation and Stroke National Plan


    • Neurosciences specifications
    • National Service Review
    • Condition specific commissioning policies

More details to follow shortly.

Dalton in Furness 17th November

Note from the ICC and Cumbria CVS

We are hosting a day at the Drill Hall in Dalton-in-Furness, from 10-4pm on November 17th, to try and ensure our local community is as well as possible over Winter, which, whilst being beautiful and crisp up here in Cumbria, we also know causes difficulties for many people. We want everyone to LOVE Winter this year! We asked around and we have identified 6 domains that people struggle with over Winter and we would like to know if you would be able to contribute to any of these domains. We will be setting out the Drill hall in 6 sections each section devoted to one of the domains and if you would like to attend, know of someone who would benefit by knowing or wish to contribute literature or a display please let us know. Or indeed have any other ideas.

The Domains are as follows:

1)      Winter Wobbles: getting out, about and around in Winter, how to maintain activity levels in reduced daylight & poor weather, how to get around to where you need to during the winter months.

2)      Winter Blues: how to reduce isolation, keep connected, prevent loneliness and poor mood when the nights draw in

3)      Winter Bugs: how to stave off or manage the inevitable winter sniffles, best advice on preventing a minor ailment becoming a major illness

4)      Winter Weather: what support is out there to ensure the winter weather doesn’t wreak havoc, slips, falls, floods, frost, home safety, ensuring enough food is in the house if you can’t go out

5)      Winter Warmth: being cold makes many illnesses worse so how can you ensure you stay warm and toasty in and out of the house

6)      Winter Wellbeing: If you already have a long term condition, what advice or support do you need to prevent it worsening over Winter

We would love as much support as possible for this very community led event. We know there are so many resources out there, so many people doing great things, but do the right people know about it? We are hoping that both the work leading up to this event & the event itself will go a long way to connecting people, communities and resources.

In  addition the Furness Urgent Care Network which is a formal NHS body consisting of senior leaders in Acute & Urgent Care eg hospital managers, A&E consultants, Chief Nurses, Adult Social Care teams and Community Nursing teams will be holding their monthly meeting at the Drill hall in the morning so there is an opportunity for those people to see what support there is for the NHS from all the amazing work in the community & vice versa.

Please start talking about how we can shape this event, get back to us with ideas, contributions or criticisms so we can ensure that the event really showcases the community assets to give us the best Winter ever!

Looking forward to hearing from you

Dr Arabella Onslow

The Canterbury tales: lessons on how accountable care systems should work

This report, from The King’s Fund – Developing accountable care systems: lessons from Canterbury, New Zealand, found that there’s a lot that the NHS can learn from the Canterbury region on how accountable care should work – and how it should not.

Web link:

Neighbourhood Planning Event – Scaleby Village Hall, Carlisle

Neighbourhood Planning Event – Scaleby Village Hall, Carlisle, 21st November 2017 (circulated on behalf ACTion with Communities in Cumbria)

This free event is aimed at anyone who is interested in influencing development in their local area. It will be particularly useful if you are considering starting a Neighbourhood Plan. You could be representing a community group a Parish Council or your own neighbourhood as a resident. Please come along and see what Neighbourhood Planning can do, and what help is available to you in Cumbria.

Charity power

Larger charities must ‘give up some power’, says Shelter head Polly Neate, chief executive of the housing and homelessness charity, tells an NPC conference that the charity sector has to ask itself some difficult questions about the balance of power

Polly Neate, chief executive of the housing and homelessness charity Shelter, has called on larger charities to give up some of the power they hold in order to help the sector regain public trust.

Speaking at the annual conference of the think tank NPC in London yesterday, Neate said that in order for the sector to get off the back foot it had to face difficult questions about power and the privileged positions enjoyed by some charities.

She said that although the sector had power it was concentrated in the hands of a few organisations. This power was consolidated by large charities in the way they used their brands, which Neate said was “the enemy of partnerships and the enemy of sharing power”. She said: “It stops civil society, or the idea of charity, from having a brand, by which I mean from having a clearly recognised identity and a set of understood values.” Neate made some implicit criticism of schemes such as the Understanding Charities Group, which was developed by a group of charities with the aim of improving public trust in charities, although she did not name any particular initiative or organisation.

“I do not think that people are losing trust in charities because they do not understand how charities work,” she said. “I think the sector does have some comms problems, but that is a symptom not a cause.” She criticised the significant sums spent by some charities that helped them consolidate their own positions but resulted in minor policy changes for beneficiaries. What we are getting at the moment is quick wins from reasonably big charities that cost a lot of money,” Neate said. We are putting in a fortune to make a teeny-weeny impact for the beneficiaries, when we should be bringing some of that power closer to our beneficiaries and looking at different ways of achieving change. Some of those policy changes we are seeing shore up the privilege of those organisations, but they might not have a big impact on people’s lives.”

Neate called for a conversation about how the sector could share power more equally and said some charities should give up their privilege to help the sector develop a common narrative that would convince people they should trust charities again. If we are going to think of ourselves as that third force, we are going to have to be more united,” she said.

“If civil society is going to realise its power as a third force, the big charity brands will have to make sacrifices. For people with privilege, it will hurt. Giving up privilege hurts. If it doesn’t, you are not doing it right. She said the sector was not “eyeballing each other” and talking about how it could share power. I really believe that the only way we as a sector can seize the moment is if organisations with power face their privilege and have the courage to address it.”


14 November 2017 – the next Cumbria Action for Health network meeting

From 12.15pm to 3.30pm at The Conference Centre, Newton Rigg College, Penrith, CA11 0AH.

Begins with a networking lunch at 12.15pm, and the main meeting will commence at 1.00pm.

Colin Cox (Director of Public Health, Cumbria CC) will be giving an update on ‘the health and care system in Cumbria’, followed by a session to help identify priorities for the third sector, working in health and care. This will help to inform the activities and themes of the network over the next 12 months.

If you’d like to attend, please return the attached booking form to ideally before the 10 November.

14 Nov 17 A4H Booking Form

Cumbria CVS AGM

Sorry we can’t attend this as it clashes with our own meeting but look forward to feedback

Thursday 9 November 2017
9.30am – 12.30pm
Castle Green Hotel, Kendal LA9 6RG

Please note is still not too late to join us and help us celebrate our achievements over the past 12 months, learn more about our services, hear about our plans for the future and network with others.  It is a great event for CVS members to attend as it is an opportunity to have a voice; to help influence future delivery; to help elect new trustees; network with other organisations; improve knowledge and promote services.  This event will also have a keen focus on the partnerships and collaboration.

If you would like to attend please simply call us on 01768 800350 or email us on

We look forward to seeing you there.

Alison Phillips
Support Services Manager
Cumbria CVS 
6 Hobson Court, Gillan Way, Penrith CA11 9GQ (Registered Office)
Office: 01768 800350