New Care Models: William Roberts presentation

Earlier this month NHS England’s William Roberts, National Care Homes Programme Lead
(New Care Models Team) spoke about the aims behind the Enhanced Health in Care Homes
(EHCH) programme. His presentation can be found here.



Personalised Health and Care 2020

Last month the Department for Health, in conjunction with the National Information Board published
Personalised health and care 2020: service user vision.

This report explores how changes in digital technology aim to improve patient, carer and service user experiences of health services in England.


Accelerated Access Review

The Department of Health and the Department for Business, Energy & Industrial Strategy have
released a joint response to the Accelerated Access Review (AAR), setting out how government will
improve patient access to breakthrough technologies and treatments.

The AAR made a series of recommendations to enable the NHS to: improve patient outcomes; use the UK’s strong biosciences research and life sciences industrial base, and; enhance the international competitiveness of our life
sciences industry.

Download the report at

The AAR made a series of recommendations to enable the NHS to:

  • improve patient outcomes
  • use the UK’s strong biosciences research and life sciences industrial base
  • enhance the international competitiveness of our life sciences industry

The response to this review sets out how government will work with industry and the health system to create an approvals system so that cost-effective breakthrough products can get to NHS patients as fast as possible.

Key elements of this response include:

  • an Accelerated Access Collaborative that will develop an accelerated access pathway to bring breakthrough products to market and then to patients as quickly as possible
  • £86 million government funding to support innovators and the NHS in overcoming barriers to getting new, innovative technologies to patients quickly
  • improved NHS England commercial capacity and capability to deliver deals that achieve better value for the NHS and innovators

Social Care Spending

NHS Digital

Social care spending up £556m as costs also rise: On 25 October NHS Digital announced
that annual spending by local authorities on social care rose by £556 million in 2016/17 to £17.5

Also published by NHS Digital is Adult Social Care Outcomes Framework (ASCOF). Findings of this report include:

  • The proportion of adults with a learning disability in paid employment has fallen each year over the last three years, from 6.0 per cent in 2014/15 to 5.8 per cent in 2015/16 and then 5.7 per cent in 2016/17.
  • The proportion of adults with learning disabilities in paid employment varies across English regions. London (7.2 per cent) and Eastern (7.1 per cent) have the highest proportion; North West, East Midlands and West Midlands have the lowest at 4.2 per cent.

NHS Digital • New innovation in digital standards

New innovation in digital standards to improve child health information:

NHS Digital have launched new digital standards which will enable everyone involved in a child’s care,
including parents, to access a standardised set of paperless, digital child health records.

• Report shows prevalence of key conditions across England: At the end of last month
NHS Digital announced this report, which includes prevalence information on 21 condition
including Dementia, Depression, Epilepsy and Mental Health. You can read the full report here.

NHS Digital


Appointment of Neurological Alliance Chief Executive – Maternity Cover

Appointment of Neurological Alliance Chief Executive Maternity Cover
We are delighted to have appointed Joe Korner as maternity cover for our Chief Executive Sarah
Vibert.  Joe has worked in the charity sector for over 30 years, including as Director of External
Affairs at the Stroke Association for ten years until 2015.

Joe’s time at the Stroke Association saw the charity win important campaigns such as the creation of a National Stroke Strategy; the creation of acute stroke units across the country; and the FAST (Face, Arm, Speech, Time)
advertisements raising awareness of stroke symptoms.

Joe starts at the Alliance on 15 January, and will be at the AGM and December policy group meeting. We will share contact details shortly.

All Party Parliamentary Group for ABI

Paul Brown contacted us, secretary for both the Northern Acquired Brain Injury Forum (NABIF) and UK Acquired Brain Injury Forum (UKABIF) with some good news – the All Party Parliamentary Group for Acquired Brain Injury was formally established last month was formally launched in Parliament on the 28th November.

We would like to get more MPs involved in this group and therefore ask that you send the attached letter template to MPs within your constituency to encourage them to join the APPG.

In order to find out who the MP in your constituency is, simply follow this link, and enter your postcode in the ‘Keywords’ box:

The United Kingdom Acquired Brain Injury Forum (UKABIF) aims to promote better understanding of all aspects of ABI; to educate, inform and provide networking opportunities for professionals, service providers, planners and policy makers and to campaign for better services in the UK.

An Acquired Brain Injury (ABI) is brain damage caused by events after birth and can result in cognitive, physical, emotional, or behavioural impairments leading to permanent or temporary changes in functioning. Exact figures are unknown, but a very low estimate is that over one million people live in the UK with the effects of ABI at an estimated minimum cost of £4.1 billion.

UKABIF is a membership organisation and charity, established in 1998 by a coalition of organisations working in the field of ABI.

You can read more about the work of UKABIF at

National Neuro Advisory Group & Clinical Reference Group

14th November 2017

The NA patient group met with Professor Adrian Williams, National Neuro Advisory Group Chair and Clinical Reference Group chair and  Jackie Kemp, lead commissioner for adult neurosciences. There was a tight agenda including:


  • NICE guideline on suspected neurological conditions in primary care
  • Clinical leaders away day feedback and key messages
  • Programme management
  • Condition specific workstreams update
  • Data subgroup
  • Rehabilitation and Stroke National Plan


    • Neurosciences specifications
    • National Service Review
    • Condition specific commissioning policies

More details to follow shortly.

Dalton in Furness 17th November

Note from the ICC and Cumbria CVS

We are hosting a day at the Drill Hall in Dalton-in-Furness, from 10-4pm on November 17th, to try and ensure our local community is as well as possible over Winter, which, whilst being beautiful and crisp up here in Cumbria, we also know causes difficulties for many people. We want everyone to LOVE Winter this year! We asked around and we have identified 6 domains that people struggle with over Winter and we would like to know if you would be able to contribute to any of these domains. We will be setting out the Drill hall in 6 sections each section devoted to one of the domains and if you would like to attend, know of someone who would benefit by knowing or wish to contribute literature or a display please let us know. Or indeed have any other ideas.

The Domains are as follows:

1)      Winter Wobbles: getting out, about and around in Winter, how to maintain activity levels in reduced daylight & poor weather, how to get around to where you need to during the winter months.

2)      Winter Blues: how to reduce isolation, keep connected, prevent loneliness and poor mood when the nights draw in

3)      Winter Bugs: how to stave off or manage the inevitable winter sniffles, best advice on preventing a minor ailment becoming a major illness

4)      Winter Weather: what support is out there to ensure the winter weather doesn’t wreak havoc, slips, falls, floods, frost, home safety, ensuring enough food is in the house if you can’t go out

5)      Winter Warmth: being cold makes many illnesses worse so how can you ensure you stay warm and toasty in and out of the house

6)      Winter Wellbeing: If you already have a long term condition, what advice or support do you need to prevent it worsening over Winter

We would love as much support as possible for this very community led event. We know there are so many resources out there, so many people doing great things, but do the right people know about it? We are hoping that both the work leading up to this event & the event itself will go a long way to connecting people, communities and resources.

In  addition the Furness Urgent Care Network which is a formal NHS body consisting of senior leaders in Acute & Urgent Care eg hospital managers, A&E consultants, Chief Nurses, Adult Social Care teams and Community Nursing teams will be holding their monthly meeting at the Drill hall in the morning so there is an opportunity for those people to see what support there is for the NHS from all the amazing work in the community & vice versa.

Please start talking about how we can shape this event, get back to us with ideas, contributions or criticisms so we can ensure that the event really showcases the community assets to give us the best Winter ever!

Looking forward to hearing from you

Dr Arabella Onslow