Supporting more unpaid carers in north Cumbria

11th June

Press release from North Cumbria Health

Health professionals have been working closely with organisations that support unpaid carers in Cumbria to find ways to reach more people and provide the support needed for them to continue in their vital role.

Unpaid carers, anyone who looks after a family member, partner or friend who cannot cope without their support, play a vital role in the health and care system but often don’t access the support that’s available. Eden Carers, Carlisle Carers and West Cumbria Carers have been looking at how they work with health professionals, who come into contact with carers on a daily basis, to raise awareness of their work.

Stephen Eames, Chief Executive at Cumbria Partnership NHS Foundation Trust and North Cumbria University Hospitals NHS Trust, commented:

“This work is an excellent example of health, care and third sector organisations working closer together to benefit people in Cumbria. It is exactly the type of closer working we’re trying to achieve through the development of Integrated Care Communities (ICCs). Unpaid carers play an essential role in our communities and by working together we can ensure they can access the support that’s available to them to help them to stay well.

“It is the ambition of our ICCs to increase the number of projects like these where we work as one system to provide seamless care for all those who come into contact with our services. We will continue to implement the lessons learned to benefit more people and create happier and healthier communities.”

These are just three examples of where health, care and carers’ organisations have successfully worked closer together to support more unpaid carers in north Cumbria.

West Cumbria Carers

Members of staff from West Cumbria Carers work closely with the discharge team at the West Cumberland Hospital (WCH) ran by North Cumbria University Hospitals NHS Trust (NCUH). They spend time on wards each week and talk to carers at visiting time to introduce the service and organise carers’ assessments and support for when the person being looked after leaves hospital.

Between April 2016 and 2017 210 carers were identified and 87 of these were referred to West Cumbria Carers for further support. As a result of the relationships that were built a similar approach is now underway in the Cumberland Infirmary, Carlisle, to support patients from west Cumbria.

Ann Quinn, Carers’ Health Support Worker at West Cumbria Carers, said: “Since engaging with the Discharge Team and other services at WCH we have developed a pioneering approach of identifying carers. The openness to joint working means that we have so many more opportunities to meet with health professionals and to support them to identify carers and proactively refer them into our services.”

Eden Carers

Eden Carers has a strong relationship with the Eden Memory and Later Life Service, ran by Cumbria Partnership NHS Foundation Trust (CPFT). A member of staff acts as a ‘carers’ champion’ and the whole team identify carers and signpost them to Eden Carers. In 2017 the Memory Services referred 62 carers to Eden Carers who then had their needs assessed and were given support tailored to them.

Jennifer Bell, Trainee Assistant Practitioner and Eden Carers champion at CPFT, said: “I’m passionate about the work I do as a carers’ champion. Every day, unpaid carers provide invaluable support to our health and care system and are a huge part of our future. I help to make sure that they have access to support that’s available and I’d encourage all other health and care workers to consider becoming champions too. Making referrals to carers’ organisations couldn’t be easier so it’s vital that all health professionals make the most of this fantastic resource.”

Carlisle Carers

Staff on Hadrian Unit at Carleton Clinic in Carlisle, ran by CPFT, started an initiative in 2012 to better involve family and carers. They began to invite family members/carers along to find out more and ask questions. During this visit the carer’s needs are assessed and referrals made to carers’ organisations if appropriate.

The success of this led to an aspiration to have a carers’ champion in every inpatient mental health ward and crisis teams. At least one member of staff from each team was given training, with support from Carlisle Carers, on the role of carers, how best to involve them in care and what support is available. They then share this training, which includes case studies from local carers, with the rest of the team.

Kay McGregor, Operations Manager at Carlisle Carers, commented: “This has been an excellent opportunity to work with CPFT, ensuring carers are identified and referred whenever there is a need. Training initiatives have been set up for staff, focusing on the importance of their patients’ carers and raising awareness of what support is available, specifically around mental health.”

Carers make up more than 10% of the population but relatively few receive support from carers’ organisations, despite the practical and emotional pressures they may face. They are often unaware of support available; don’t recognise themselves as a carer or don’t know where to turn for help.

This work was part of the Reaching Out to Carers project, supported by funding from the Big Lottery Fund, and successes from this will continue to be implemented across the health and care system. 80% of carers involved said a change in health was the trigger for them to access support and more than half said that intervention from a health or care professional was key in their seeking support from a carers’ organisation.


Notes to editor

This press release was developed by the North Cumbria Integrated Care System.

A summary of the Reaching Out to Carers project is available here:

More information on carers’ organisations in north Cumbria is available on the following sites:

Carlisle Carers –

West Cumbria Carers –

Eden Carers –

More information about the North Cumbria Integrated Care System is available here:

National Carers week takes place between 11 and 17 June 2018 –


Notes to editors

The North Cumbria Health and Care System is made up of health and care commissioners and providers – Cumbria Partnership NHS Foundation Trust, NHS England, NHS North Cumbria Clinical Commissioning Group, North Cumbria University Hospitals NHS Trust, NHS Improvement, North West Ambulance Service, primary care – working in partnership with Cumbria County Council and third sector organisations.


This integrated approach to health and care will see much closer working between organisations – it is not a merger or the creation of a new organisation.

State of Caring Survey 2016

Carers UK

Based on findings from Carers UK, State of Caring Survey 2016, ‘Missing out: The identification challenge’ research project explores the time it takes for people to recognise they have taken on a caring role, and whether they had missed out on support because they simply didn’t think of themselves as a carer.

The Care Act 2014

With Part 1 of the Care Act 2014 coming into effect in April 2015, it has far reaching change to the provision of care and support. Part 2 comes into effect April 2016 which includes the cap on care costs.

The act:
– creates a new duty of promote wellbeing in individuals with care needs
– gives carers rights to support on a similar basis as those they care for
– creates a new universal duty to prevent reduce and delay the need for care, which includes those not receiving
– creates a national minimum eligibility threshold
– creates a duty to provide independent advocacy, where someone has substantial difficulty being involved in the
process and there is no one to act for them
– sets a cap on the amount people will pay for eligible assessed care

For further details go to: The Care Act 2014
The government has also produced a series of two sided fact sheets.