Parkinson’s UK

Barrow neuro drop in sessions update

Barrow planning meeting

Members of the Cumbria Neurological Alliance are developing a neuro drop-in centre for people living with a neurological condition, their families and carers. It will be based in the Hindpool Centre, Barrow in Furness.

Charities and specialist neuro therapists working across South Cumbria came together this month to plan the programme which starts on 2nd November. The first groups will be hosted by Parkinson’s UK, Headway South Cumbria and the MND Association.

Dr David Footitt Consultant Neurologist said “I was delighted to hear that Cumbria Neurological Alliance has been able to secure support to run regular drop-in sessions at the Hindpool Community Centre. Whilst patients and carers affected by some of the commoner neurological conditions benefit from local support groups, too many people feel isolated by their condition and unable to link with others facing similar challenges. There are many common experiences shared between people with Neurological conditions. This initiative provides people with the opportunity to share, support and learn from one another whilst enjoying social interaction and a range of activities. This concentration on a core of well-being, supporting independence and maintaining social contacts is key to improving outcomes for my patients. I trust that we in the NHS will be able to support it to succeed and flourish.”

Dr David Footitt Consultant Neurologist Cumbria

The initiative has been supported by Dr Farhan Amin, GP and member of the Morecambe Bay CCG and Les Graham public health locality manager with Cumbria County Council.

Check out the programme https://cumbrianeurologicalalliance.wordpress.com/new-neuro-drop-in-centre-barrow/barrow-neuro-dropin-centre-programme/

Enquiries to Glenys Marriott Chair Cumbria Neurological Alliance at cumbrianeurologicalalliance@gmail.com Twitter @cumbrianeuro

Colin from the ABI team with Christine and David Wilson from Headway South Cumbria

 

David Schofield

 

The team from BIRT Barrow

More photos to come!

Dates for the new Barrow Neuro Dropin Centre. 

Anyone living with a neurological condition, carers or family are welcome to attend.

Meetings take place starting at 11 am until 2 pm.  Tea, coffee and biscuits will be available.

We shall be adding regular updates as the programme develops. We hope in the near future that the groups will be held on every Thursday in the month but so far we are pleased to say that all but the second Thursday in the month are confirmed

November 2017 
Thursday 2nd November Run by Parkinson’s UK

Programme appearing soon

Thursday 9th November currently vacant
Thursday 16th November Run by Headway South Cumbria

Social drop in plus:

A session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 23rd November Run by MNDA 

Programme appearing soon

Thursday 30th November

Start 11 am

ALL welcome – open meeting to discuss ideas for the future programme and to share progress so far
Image result for neurological conditions Image result for neurological conditions
 December 2017
Thursday 7th December Run by Parkinson’s UK

Programme appearing soon

Thursday 14th December Currently Vacant
Thursday 21st December Run by Headway South Cumbria

Social drop in plus mince pies and a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 28th December NO MEETING
 2018
 January 2018
Thursday 4th January 2018 Run by Parkinson’s UK

Programme appearing soon

Thursday 11th January 2018 Currently vacant
Thursday 18th January 2018 Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 25th January 2018 Run by MNDA 

Programme appearing soon

 Image result for neurological conditions  Image result for neurological conditions
Dates February 2018
Thursday 1st February Run by Parkinson’s UK

Programme appearing soon

Thursday 8th February Currently vacant
February 15th February Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

February 22nd February Run by MNDA 

Programme appearing soon

March 2018
Thursday 1st March Run by Parkinson’s UK

Programme appearing soon

Thursday 8th March Currently vacant
Thursday 15th March Run by Headway South Cumbria

Social drop in plus:

a session which includes a postural/antigravity muscle control exercise class with Jan Waddington, physiotherapist with the Cumbria Partnership NHS Foundation Trust.

Please note – people doing the class should not eat a heavy lunch beforehand.  Useful for many living with a neurological condition

Thursday 22nd March Run by MNDA 

Programme appearing soon

Thursday 29th March

Start 11 am

ALL invited.  This will be a review meeting to consider how the first months have developed

Any queries please contact cumbrianeurologicalalliance@gmail.com

New Parkinson’s campaign backed by NHS chiefs

With Parkinson’s Awareness Week taking place between 10-16 April, the Parkinson’s UK charity have introduced a new campaign “We Won’t Wait”, which encourages the public to donate towards research, aiming to find new treatments for the disorder.

Doctors at Morecambe Bay Clinical Commissioning Group (CCG) are supporting the campaign to help find new treatments for the condition, as well as educating the public on what treatments are currently available.

The last significant drug discovery for Parkinson’s disease was over 50 years ago and campaigners are keen that more is done, so that people who suffer from the disorder can benefit from improved treatments. Parkinson’s affects part of the brain and over time the condition is deteriorative. The most common symptoms include tremors (involuntary shaking of parts of the body), stiff muscles and slow movement.

Parkinson’s disease is a serious condition; there are an estimated 127,000 people in the UK, who suffer from the disorder.

The treatments currently available to help reduce the symptoms include:

  • Physiotherapy and occupational therapy
  • Medication
  • Surgery

A number of people who suffer from the disease respond well to the treatment and their quality of life is enhanced; however, in a few cases, patients do not respond well to treatment and for this reason, campaigners are keen that research into new treatments continues.

Dr Alex Gaw, from Morecambe Bay CCG, said: “There is still a lot that needs to be done for people who suffer from Parkinson’s disease. This is why I am calling upon local residents to support the Parkinson’s UK charity, so more money can be spent on research into new life-changing drugs.

“If you feel you are experiencing symptoms of this disorder, I would suggest seeing your GP for a consultation. They may refer you to a specialist for further tests if needed.”

For more information about the charity, Parkinson’s UK, which can help people who are living with the disease and provide them with support groups in their local area, call 0808 800 0303 or email hello@parkinsons.org.uk

NHS Choices is also available for anyone who needs any help or advice regarding the disorder.

 

Continuing to care report

This report was written by Parkinson’s UK in association with the Continuing Healthcare Alliance.

It looks into the current state of NHS continuing healthcare in England and whether it’s supporting the people who need it most.

We believe that it isn’t, and we want you to share the report with your local decision makers to improve the system.

Download the report

Continuing to care report front cover

Download the Continuing to Care report (PDF, 3MB)

 

Parkinson’s – it’s in the genes

Scientists the Parkinson’s UK fund have discovered changes in 3 genes that may affect brain function – including memory and thinking – in people with early Parkinson’s.

The discovery, in the journal Brain, has been made by researchers in Cambridge and Newcastle as part of a 5 year long study of Parkinson’s dementia funded by Parkinson’s UK.

Over 200 people with and without Parkinson’s took part in the study that investigated if differences in genes commonly seen in people with Parkinson’s were linked to changes in how the brain works.

http://www.parkinsons.org.uk/news/7-august-2014/parkinsons-dementia-its-genes