patient experience survey

NA Patient experience survey Closes 17th January!!

The patient experience survey will remain open until 17 January. We’re still asking member organisations to promote it across as many communications channels as possible – this is what ensures the best response rates. See more, including comms materials and a survey link, on our webpage on the survey.

The NA team are also in the process of approaching neurology services across England about the roll out of our ‘in clinic’ survey from January.  So far the response from clinicians has been very positive. The NA team attended the Association of British Neurologist’s Services Committee meeting where we took the opportunity to seek their support in engaging clinicians.

NICE needs your help!

Message from NICE:

“The National Institute for Health and Care Excellence (NICE) is doing an important research project to understand the perceptions and experiences of our users. We would like to know what you think of us as an organisation, including how we operate and how you keep updated with our work. 

The results will be presented to our Board and by sharing your views you will play a part in shaping our products and services. Your feedback will be valued and appreciated.

To take part, we ask that you complete this short survey, which should take approximately 10 minutes, by Friday 5th May 2017. All responses will be completely confidential and remain anonymous in any reporting. 

If you have any questions about the survey, please contact

Thank you in advance for your contribution. 


Audience Insight Team National Institute for Health and Care Excellence

Level 1A | City Tower | Piccadilly Plaza | Manchester M1 4BT | United Kingdom

Email: Web: NICE


Any personal data sent to NICE will be used for the purpose of conducting surveys and related user research to improve NICE services. The data may be passed to third parties in accordance with the Data Protection Act 1998 in order to carry out associated work. The information you provide will be treated in confidence and will only be disclosed as required by law including, but not exclusively, the Freedom of Information Act 2000.”


Patient experience survey – launch June 2016

Arlene Wilkie CEO the Neurological Alliance has written “We would like to remind members that this summer we will be launching the second iteration of our neurological patient experience survey. We intend to launch the survey in June and hope that members will assist in disseminating the survey as widely as possible. Last year’s survey received almost 7,000 responses thanks to the support of our members, and we hope to surpass that this year. We will be in touch over the coming weeks and months with more information. The questions and responses from the 2014 survey are available here.”

This was a vitally important survey giving a wealth of information recounting the pressures experienced by families living with a neurological condition.

Watch this space for the new survey