Disability Rights UK ‘Tell Us About Your Care’ partnership with the Care Quality Commission

Good Care, Poor Care. Tell us now


Disability Rights UK is working with the Care Quality Commission (CQC) as part of the ‘Tell Us About Your Care’ partnership together with a number of national charities, including Mind, The National Autistic Society, Patients Association and the Relatives & Residents Association.

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Disability Rights UK will be gathering feedback from disabled people who contact us about their experiences of using health and social care services.

Deputy CEO Sue Bott says:

“Disability Rights UK are delighted to be working with CQC as part of the Tell Us About Your Care Partnership.  We are pleased that through this initiative disabled people and people with long term health conditions will have the opportunity to tell the regulator about their experiences of the health and social care services they use, not only specialist services but services like GP surgeries that are used by everyone.”

The CQC website can be accessed here, and in the meantime you can also provide direct feedback to the CQC on your experience of using any of the services they regulate.


Disability Benefits Consortium benefits survey 2017

The Disability Benefits Consortium (DBC) is a national coalition of over 80 different charities and other organisations committed to working towards a fair benefits system for disabled people, people with long-term conditions and their carers.

This survey will ask you about Employment and Support Allowance (ESA), Personal Independence Payment (PIP) Attendance Allowance (AA) and Universal Credit (UC). However, you will only be asked about the benefits you’ve applied for.

Your responses will remain anonymous, unless you offer to be contacted further to support our campaigning work. Your anonymous responses will not be shared and will only be used by the Disability Benefits Consortium and its members to campaign for improvements to the benefits system.

The more responses they get, the more effective they can be in challenging government. So please spread the word and encourage clients to complete the survey – it takes between 10 and 30 minutes. Go to survey


Co-care survey

Researchers from the Southampton University, together with the National Council for Palliative Care, are conducting a survey of how volunteers provide support for family caregivers at home. The information from the survey will be used to build a picture of the kind of support that volunteers provide nationally. To take part in the survey or find more information please see here.


Neurological Alliance national survey

Thanks to everyone who took part in the Neurological Alliance patient experience survey over the last few months. The total number of responses was 6,916

The highest number of responses was from those diagnosed with multiple sclerosis and migraine and 178 people stated that they were awaiting diagnosis.

The Neurological Alliance will be analysing the results by condition and region and we hope to announce their report later this year. In the meantime, NNA collated over 42 responses on behalf of the national alliance and we will be discussing the information provided to see how it helps with setting our priorities for the coming year.

To keep in touch with the national alliance follow this link:

National Neurological Alliance – Patient experience survey – still time to complete

The survey is the first of its kind for the neurological community. It aims to collect vital information about the experiences of care received by people affected by neurological conditions and help us to understand how much progress has been made in improving neurological services.

The survey is open until Monday 15 September 2014 and we welcome responses from anyone with a neurological condition living in England.

We will be using the survey findings to feed into a report later this year. The report will set out a comprehensive picture of what is happening in relation to neurological services and make recommendations about how care can be improved.

This is without doubt a timely and exciting opportunity for the neurological community.

We need your feedback to be able to make the strongest case to decision makers about how services need to change. We really value your support and look forward to sharing our findings with you over the coming months.

Please click here to complete the survey.